Posted at January 31, 2012 | By: | Categories: 2012,Fragile Xtras | 1 Comment

Are You Willing to Stand Up and Be Counted?

Join us in Washington, DC to inform Members of Congress that real drug treatments capable of making tangible improvements in the quality of life for individuals living with Fragile X have progressed from “theoretically possible” to “cautiously probable.” –and urge them to make sure that the services to bring these developments to market – are adequately funded.

We are fortunate to live in a country where the doors of these powerful individuals are open to every one of us–just for the asking. But ask we must. There are seemingly limitless competing priorities at a time of limited resources. If we want what’s important to us to continue to be funded, we have to be willing to stand up and be counted.

Are you willing to stand up and be counted? Do you want to help write the future of Fragile X? Then join us in Washington, DC on March 6-7, 2012 for NFXF Advocacy Day. With your help, we will continue to move forward in shaping this remarkable journey.