- Fragile X-associated Disorders
- Treatment & Intervention
- Public Policy & Legislative Advocacy
- Support the NFXF
The Fragile X Resource Center of Western Massachusetts thanks everyone for supporting its second annual fundraiser on July 22 for the National Fragile X Foundation! Once again, they were overwhelmed by the support from their community. This wine tasting event would not have been possible without Connie from Carmelina’s, and Sean Barry from the Four Seasons, who arranged for wine distributors to be pouring along with family members.
Thanks to all who donated to the Silent Auction:
The final tally for the evening was over $2,000!
Attendees celebrated Governor Patrick’s proclamation to make July 22 Fragile X Awareness Day in Massachusetts. Denise thanks John Scibak, the Massachusetts state representative who endured, along with his staff, multiple emails and calls from her, the Selinger’s of the Fragile X Society of Connecticut who inspired her to “go for it,” Melissa and Eric Welin from the Fragile X LINKS Group of Eastern Massachusetts for gathering letters of support for the bill, and Seaside Therapeutics staff members who along with Eric helped by testifying on behalf of the bill at the statehouse in Boston.
Our thanks to Jennifer Mathias and her family and friends for organizing another very successful “Walk for Fragile X” in Bernville, PA. Walkers raised nearly $8,000 while enjoying beautiful June skies. Special recognition goes to Blue Mountain Metal Finishing in Bethel, as the top business sponsor, Team Mathias (Sarah, Faith, Jonah & Chloe Mathias), who raised $1,761.30, and Andy Tobias who raised $1,400!
Board Member Dave Justus and his wife Joy opened up their beautiful home to family and friends for a delicious Labor Day BBQ. Supporters enjoyed the fantastic California weather and were inspired by recent research news shared by Dr. Randi Hagerman to raise over $20,000 for Fragile X.
Members of the Kansas Fragile X LINKS Group led by LINKS Leader Brooke Stack held their Seconnd Annual Walk for the Faces of Fragile X in early October. Despite the chilly fall day, over 200 walkers and supporters, including surprise guest Cindi Rogers, showed up to participate and raise approximately $15,000.
Congratulations and thanks to everyone!
High school friends and band members of Harold Muma recently got together to celebrate the momentous (half century!) birthday of fellow rocker and great friend of the Muma’s, Phil Rees. Phil and his wife Heather organized the Rockfest to raise money for the NFXF. Lee Anne Muma commented, “We had so much fun! It was great to see these ‘old guys’ up there jamming away!” Sorry we missed that party, but our thanks to all!
As always, the NFXF is humbled and honored to have so many, work so hard on our behalf. We could not possibly begin to fulfill our mission without their efforts. Many, many thanks!
If you are inspired and motivated to organize your own fundraiser, we can help! Please contact us at firstname.lastname@example.org.