New LINKS Groups Sprouting Across the Country!

The LINKS Support Network is a wonderful way to get involved in the Fragile X community on a local level, to meet new families, share experiences, work together to raise awareness, advocate, fund raise, build friendships and most importantly, be a part of the support for families just like yours. Visit our LINKS Support Network map to see all of the LINKS groups and find the nearest one to you.

It’s been a very busy fall for the LINKS Support Network! We have many new groups and some established groups changing leadership. It is a very exciting time for families with new opportunities for social and awareness events, fund raising, advocacy and educational opportunities.

We are excited to welcome the following groups, who have recently sent out surveys of interest to families in their area:

Southeastern Pennsylvania LINKS Group

Leaders: Kara Frech, Ruth Butler, & Tara Pizzo
Email: sepafx@gmail.com

Heartland Fragile X Alliance LINKS Group (Iowa and South Dakota)

Leaders: Tim Geels, Brenda Slama, & Nancy Carlson
Email: heartlandfx@gmail.com

Fragile X Families of the Appalachians LINKS Group

Leader: Brittany Marshall
Email: brittany.marshall@live.com

We are excited to be working with the following up and coming groups – if you are in these areas please be on the lookout for a survey and information coming your way soon!

Fragile X Las Vegas

Leaders: LisaMarie and Bob Valdez
Email: fxllv@yahoo.com

Central North Carolina LINKS Group

Leaders: Gwen McCloud and Stormy Hamm
Email: centralncfx@gmail.com

Greater Portland Fragile X LINKS Group

Leaders: Jennifer and Rene’ Devantier
Email: GPFXlinks@gmail.com

Central California Fragile X LINKS Group

Leader: Tiffany Pace
Email: centralcafx@gmail.com

Northern Georgia Fragile X LINKS Group

Leader: Lisa Bryan
Email: wldawgs89@gmail.com

Also be watching for exciting information on new LINKS groups in Maryland, Florida and North Carolina.