It is with much enthusiasm that we announce the launch of a new LINKS group: Heartland Fragile X Alliance.
About the LINKS Leaders: Tim Geels lives in Dakota Dunes, DC and has a 6 year old son, Tyler, with Fragile X. Brenda Slama lives in Pocahontas, IA and has a 7-year-old son, Gus with Fragile X. Nancy Carlson lives in Ankeny, IA, and has an 18 year old son, Derek, with Fragile X.
The group would like to include you in our future plans! Please complete this survey so that they can get feedback on the type of events and programs you are most interested in attending and what role you might like to play in the group’s activities.
Myself (Mother) has a premutation. Son has full mutation of Fragile X, daughter not tested.