Help Us Keep Fragile X in the Federal Budget! (Deadline March 20th)
It’s been one week since Fragile X Advocacy Day 2012, and we need your help—right now! (Even if you didn’t participate in Advocacy Day.) The more people who help, the better it will be for the cause of Fragile X. What we want to do is make sure that Fragile X stays in the Federal Budget to continue supporting Fragile X research and programming. All you have to do is follow the link below, fill in your personal information one time, and you’ll be presented with letters to each of your Senators and your Congressional Representative. Once you complete your email letter, you’ll be given suggestions for some hand-written notes we would ask you to send as well.
One deadline that we’re facing is next Tuesday, March 20, 2012 — the last day for House Members to submit to the Appropriations Committee — so please get on this ASAP if at all possible. And please forward to friends and family who can help expand our effort. Thank you!
More Action Alerts to follow soon so stayed tuned. Check out the new FX Advocates Group on Facebook.
Stay Connected
Couldn’t make it to Advocacy Day – we’ll you can still lend your voice, be heard, and help the Fragile X cause…. http://t.co/327bh0j5
I have a cousin with fragile X, his name is Zac Brady and he attends Ripley Middle School.
Please helpmy friends !
Keep Fragile X funding in the Federal Budget! For Danny!
please help my friends
Don’t drop Fragile X
We have a little brother named Zac with fragile X, he is so special, please help with the Fragile X cause!
Please keep money for Fragile X research in the budget!
I have a very special friend with a son that has fragile X…sweet Zac he is 14 he attends Ripley Middle in Ripley MS…..please keep this funding in the budget….
I know a precious boy named Zac Brady from Ripley, MS who has Fragile X. He is a blessing to everyone who knows him.
I have a nephew with Fragile X. Please keep Fragile X in the federal budget.
Please keep Fragile X research in the Federal Budget for Matthew and Sean.
I have a nephew and niece with fragile x so please keep fragile x funding in the Federal Budget! For Cj and Gracie Ann. And so many more.
please keep fragile x in many precious ones need all they can get
Look at this and help out!!!!!
Keep FragileX !!!!
Please help get federal funding for families in need into theit state montana
I aveam two childrenI that are effected. Iwould like it include fragile x confrences. Thanks for your time.
Fragile X doesn’t just affect the afflicted – it includes siblings, parents, families, communities, employers… When you consider 1 in 3,500 males and 1 in 4000 females are affected by the full mutation of the FMR1 gene, and that one in 1,000 males and one in 250 females haves the premutation form of the FMR1 gene, the scope of this condition is much larger than most understand. We continue to require support from the Federal Government not only for families and communities, but also for research. This condition has such a precise genetic component that research conducted for Fragile X Syndrome and related syndromes will be useful for other syndromes with similar genetic components or social characteristics.
My son is afflicted with the full mutation. He will be mentally handicapped for his entire life. I am a “carrier” with early stages of ovarian failure caused by my mutation. My father, another “carrier”, has the Parkinsons-like related syndrome caused by his mutation. This syndrome, due to its genetic nature, is multigenerational and multifaceted. Within three generations, my family now has to come to terms with this syndrome.
Help fragile X funding!
Those with FX can’t help themselves. I sent my letter as one more voice to try to get the funding they need. This is for my dear friend Angie’s son, Josh Grantman. She is my hero for standing up & fighting for her son. She works so hard taking care of him & fighting to get help. I love & admire her.
Angie’s cause is OUR cause! Please help!
Please keep the funding . I have family that really needs this
i have a friend with fragile x his name is zac Brady and he attends Ripley Middle School. The world would be alot better off if it was filled with Zac Brady! Please help this cause!
I have a friend who loves her son very much and does everything that she can to help him. He is such a great kid. Please do what you can to ensure that research and programs stay in the Federal Budget to help families like theirs in their struggle with Fragile X. Thank You for your attention to this matter. You have alot of love and support Josh!
Three of my nephews have this condition, we need all the help for them and their families, this is something that needs to be taken very seriously.!!
We have a son with Fragile X Syndrome. Please help him by increasing funding! Thank you!
Every little thing you do makes a difference, please stand up for Fragile X and let your voice be heard. Please help all of us!
I know a child with Fragile X Syndrome
Keep Fragile X funding in the Federal Budget! ♥
I have an amazing cousin named James who has Fragile X.
I know a child with fragile X.
I have 2 girlfriends whose sons, James and Ian, have Fragile X. Please, please, please keep Fragile X funding in the budget.
Certainly we can fund this important research especially when you consider the stupid research the government funds.
I know a child with Fragile X Syndrome.
I have 2 cousins that have Fragile X Syndrome and many other family members that are carriers.
I know a child with Fragile X Syndrome
I have a dear friend, whose son has Fragile X. Research is showing significant results. Please continue funding.
I have a nephew and multiple cousins with fragile x. Please continue the research to find a treatment or cure!
My friend has a fabulous son James who has Fragile X. With all the support he has been given is living a very fulfilling life.
Done!
My grandson has Fragile X. Please keep this funding in the federal budget for Grant who is so precious. My daughter is a wonderful mother and because of her daily battle to make sure he is receiving the therapy that he needs, he is making great strides.
I have close personal friends affected by Fragile X.
Please keep this in the budget to help those kids afflicted with this condition
I have several friends that have children with fragile X syndrome and I myself have fibromyalgia. Please keep funding and raise awareness to help these families and special children a cure.
No child left behind. We are all brothers and sisters.
My great friend Angie Grantman has a special son, Joshua who has Fragile X. She and her family have had to fight an uphill battle everyday to educate the people in Josh’s life about Fragile X and Autism. Please keep Fragile X funding to help the Grantman Family in their battle.
our family has been touched and affected by this genetic disorder. I had not heard of it until six months ago and we have sadly learned that 4 of our family are affected.
Hey, help my niece Darienne and nephews Shea and Sean. They want to go fishing with me…
I know a child with Fragile X Syndrome
This issue needs & requires our support.
Research and help with the Fragile X cure will touch many, many people. You can make it happen. Please support this huge problem. Sincerely, Penny Hughes
I know someone special with fragile x and his name is Levy!
Our nephew Caden has fragile x. He is such a blessing from our Heavenly Father. And a great joy to our family!!!! Keep Fragile X in the budget for not only our precious nephew, but for all the others!