Posted at July 2, 2013 | Categories : Community Support Network | 0 Comment

LINKS: “Walk this way!”

AnitaThe NFXF Community Support Network groups have proven over the years that they can really “walk the walk,” and now groups are joining together in a big way to get their walk on in July for NFXF Let ‘Em Know 5K upon us, we have LINKS leaders from more than 30 groups out walking to raise awareness for Fragile X.

Each of the LINKS groups who are participating in the Virtual 5K started by creating a fundraising page on Crowdrise and spreading the word through email and social media to “Let ‘Em Know” about their efforts to support the National Fragile X Foundation and their local LINKS Group.

In the month of July, our LINKS groups will be out walking in their communities. Some of our LINKS leaders will be walking with their family and friends at various times, while others are meeting up with members of their communities to walk together on a specific day! Whether they are walking, riding or biking, we are really proud of our LINKS Groups for all their efforts to continue raising awareness in their communities! One specific inspirational tidbit to share: Anita Inz (Fragile X Association of New York) got a head start on her efforts by walking the Brooklyn Bridge in June!

With July being Fragile X Awareness Month, we are looking forward to the many creative ways our LINKS groups will be raising awareness in their communities, and to sharing the pictures with you next month!

Upcoming Events

July 5
Northern Idaho Eastern Washington (NIEW) LINKS
Clarkston WA – Fundraiser TGIF Thank Goodness I’m Fragile
Contact:  NorthIDEastWA@fragilex.org

July 6
Fragile X of Minnesota
Saturday coffee
Contact:  SouthernMN@fragilex.org

Kansas FX LINKS Group
Get Together in Vassar, KS
Contact: NortheastKS@fragilex.org

July 7
Northern Idaho Eastern Washington NIEW LINKS
Clarkston WA- Meeting St. Joes Hospital
Contact:  NorthIDEastWA@fragilex.org

July  13
Tri-State Fragile X Alliance
Louisville Bats Baseball Game
Contact:  Cincinnati@fragilex.org

July 20
Louisiana Fragile X
Family Fun Day-Marksville, LA
Contact: CentralLA@fragilex.org

Fragile X Families of the Appalachians
Fragile X Festival 2013, Sugar Hollow Park Bristol, VA
Contact:  Appalachians@fragilex.org

July 21
Tri-State Fragile X Alliance
Cincinnati Reds Baseball Game
Contact:  Cincinnati@fragilex.org

Fragile X Resource Center of Western MA
Wine and beer tasting fundraiser
Contact:  WesternMA@fragilex.org

Fragile X Association of Michigan
5k and Family Picnic
Contact:

July 24
Kansas FX LINKS Group
Dodge City, KS Autism Conference
Contact:  NortheastKS@fragilex.org

July 27
Fragile X Resource Center of Missouri
Family Mouse Races in Lake Chesterfield
Contact:  StLouis@fragilex.org