Posted at April 9, 2013 | By: | Categories: 2013,Call for Action | 18 Comments

Let Congress Know We Want Fragile X Research!

It’s Advocacy Time Again—Fragile X Needs Your Help Today!

As you all know, nearly 200 Fragile X advocates gathered in Washington, DC on March 6 to brave the snow storm that wasn’t and then hand-carry our message to support FX research right into the halls of Congress. Typically the “Dear Colleague” and “Letter-to-Appropriators” we want our Members of Congress to sign would have been circulating before now…but nothing is typical in DC these days.

That means the letter is circulating only NOW and TODAY is the day to write to your MOC and ask him or her to join with our other champions in a letter to the Appropriations Committee.

You can access the template by following the links below to call or write today. All you have to do is fill in your personal information and a brief personal statement, and your emails will be delivered for you. In past years NFXF advocates have sent in between 4,000-5,000 emails and letters, so we need everyone’s participation to at least match that and more! You can help accomplish that by forwarding this letter to friends and family in your address books.

Please do it now if you can, while you’re thinking about it! Many thanks for helping all of us in the Fragile X community keep the hope alive!