- Fragile X-associated Disorders
- Treatment & Intervention
- Public Policy & Legislative Advocacy
- Support the NFXF
Parents, families, educators, physicians and providers who care for children and adults with Fragile X.
Participants will learn a variety of practical strategies that promote calming, coping and comfort. The strategies will incorporate best practice from a multidisciplinary standpoint with an emphasis on sensory/body-based skills as well as cognitive-behavioral and emotion based self-regulation techniques.
Handouts will be provided.
Tracy Murnan Stackhouse, is president and co-founder of the Developmental & Fragile X Resource Center (Developmental FX) in Denver, Colorado. She is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially fragile X syndrome and autism. Tracy has a master’s degree in developmental psychology. She received her NDT training with Lois Bly. She is SIPT Certified and was the clinical specialist in sensory integration at The Children’s Hospital in Denver as well as the OT for the Fragile X Research and Treatment Center. Tracy continued her clinical and research work with Dr. Randi Hagerman at the UC Davis M.I.N.D. Institute during its start-up year. Tracy has written several book chapters on sensory integration and neurodevelopmental disorders, and teaches nationally and internationally on sensory integration, Fragile X and related topics.
Sarah Scharfenaker, fondly known as “Mouse”, is vice-president, CFO and co-founder of Developmental FX. She has worked in the fields of fragile X syndrome and neurodevelopmental disorders for more than 15 years. She provided speech pathology services to the Denver Fragile X Treatment and Research Center at The Children’s Hospital and accompanied Dr. Randi Hagerman to the UC Davis M.I.N.D. Institute to initiate its program. Mouse has published many chapters and articles on intervention for Fragile X. Her special connection with children and adults as well as her extensive expertise allow her to bring a depth to her work that is unmatched and well remembered by those who have seen her.
Matt & Beth Rhodes