Posted at August 1, 2013 | Categories : Opportunities for families | 1 Comment

Stanford: Help Explore the Ethical, Legal and Social Implications of New Prenatal Genetic Tests

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Stanford Center for Integration of Research on Genetics and Ethics. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot be responsible for any outcomes, lack of outcomes or unintended side effects. Your name or other personal information have not been shared with the researchers/company/institution. If interested in participating in this research, it is your responsibility to use the contact information in this announcement. Additional opportunities for being part of research studies can be found at research.fragilex.org.

SCBElogoHELP EXPLORE THE ETHICAL, LEGAL AND SOCIAL IMPLICATIONS OF NEW PRENATAL GENETIC TESTS WITH THE STANFORD UNIVERSITY FORUM ON BIOMEDICAL ETHICS

The INVEST forum is designed to help people deliberate over the ethical, legal and social impact of emerging technologies. The opinions you express in this forum, a project of the Stanford Center for Integration of Research on Genetics and Ethics, will be used to make informed recommendations to technology developers, policy-makers and regulators. The current scenario deals with a new technology for prenatal genetic testing.

Participate anonymously in the INVEST forum at investforum.stanford.edu

Your contribution to this forum will help us advise technology developers, policy-makers and regulators on new genetic technology for prenatal testing. Our Center is funded by the National Institutes of Health, and one of our goals is to develop mechanisms that enhance the incorporation of ethical, legal and social considerations into research.

Learn more at cirge.stanford.edu

If you have further questions about the project, please contact Dr. Megan Allyse at megand@stanford.edu.

Stanford University IRB: 6208 (Panel: 8)