Posted at June 13, 2013 | Categories : Opportunities for families | 3 Comments

Stanford Study on Problem Behaviors in Adolescents with Fragile X

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Stanford School of Medicine. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot be responsible for any outcomes, lack of outcomes or unintended side effects. Your name or other personal information have not been shared with the researchers/company/institution. If interested in participating in this research, it is your responsibility to use the contact information in this announcement. Additional opportunities for being part of research studies can be found at research.fragilex.org.

Stanford School of MedicineThe Center for Interdisciplinary Brain Sciences Research (CIBSR) at Stanford University would like to invite you to take part in an exciting new research opportunity available to families who have an adolescent child with fragile X syndrome.

We are conducting a study to evaluate how environmental and biological factors affect the display of severe problem behavior (e.g., aggression, self-injury, etc.) in adolescents with fragile X syndrome. The lead investigator of this study is Scott Hall, PhD, BCBA-D.

Eligible participants will travel to Stanford for a comprehensive behavioral assessment conducted by a Board Certified Behavior Analyst. All travel arrangements and expenses will be provided free of charge. Families will also receive a report summarizing the results of the assessment and a $100 honorarium.

To determine your child’s eligibility for the study, please follow the link to a brief survey.

Click here to complete the survey

Thank you for your time!

IRB Approval Date: 12/18/2012; Protocol ID: 26199