Posted at April 15, 2014 | By: | Categories: Opportunities for families | 1 Comment

Parent-Implemented Spoken Language Intervention

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of UC Davis MIND Institute. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot be responsible for any outcomes, lack of outcomes or unintended side effects. Your name or other personal information have not been shared with the researchers/company/institution. If interested in participating in this research, it is your responsibility to use the contact information in this announcement. Additional opportunities for being part of research studies can be found at research.fragilex.org.

UC Davis MIND InstituteWe are recruiting a small group of mothers and their children with fragile X syndrome, between the ages of 10- and 17-years, to participate in a pilot study of a parent-implemented language intervention. The goal of this project is to teach each mother strategies which can be used to support spoken language development in their child with fragile X syndrome.

The study will involve up to 2 visits to the UC Davis MIND Institute (located in Sacramento California) and approximately 12 weekly intervention sessions. The weekly intervention sessions will be conducted via distance video-teleconferencing using Skype.

Compensation for travel-related expenses will be provided in accordance with UC Davis policies. A laptop computer equipped with video-teleconferencing hardware and software will also be loaned to each family for the duration of the project.

The project is directed by Drs. Randi Hagerman and Leonard Abbeduto and has been approved by the UC Davis Institutional Review Board.

For more information

Please contact Dr. Andrea McDuffie by phone at (916) 703-0232 or by email at: andrea.mcduffie@ucdmc.ucdavis.edu.

IRB #:520144-5