Read and share the latest Fragile X Advocacy Newsletter edition with your Members of Congress offices!
NFXF Executive Director Hilary Rosselot and Advocacy Ambassador to the NFXF Board of Directors Dillon Kelley attended the CEO Commission for Disability Employment’s Employment Summit and Hill Day in September. It was an inspiring, action-packed few days, and they are excited to share more about their experience and why it matters to the Fragile X community with you.
Dillon Kelley, Advocacy Ambassador to the NFXF Board of Directors, shares his experience at the 2024 NFXF Advocacy Day events.
During February 2024 Advocacy Day, Harmony team members had a chance to join our new colleagues alongside the Fragile X community and NFXF.
The November 2023 issue of the Fragile X Advocacy Newsletter! Please read and share it with your members of Congress!
NFXF board member Jed Seifert represented the NFXF at the CEO Commission’s Hill Day and shared his reflections on this powerful experience.
Updates on our 2023 Asks, current letters of support, legislation that has been introduced, and legislation we are monitoring.
NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine.
NFXF team member Missy Zolecki shares her recent experience as a consumer reviewer for congressionally directed federal funding for Fragile X research.
Gregg Harper, Fragile X dad to Livingston and a former five-term congressman, gave an inspirational keynote speech to kick off the first two days of the conference.
