March 19, 2025
If you have not been able to join us for Advocacy Day, you can still advocate from home by sharing our Asks with your members of Congress. Be a part […]
October 4, 2024

Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!

October 2, 2024
04 mins read

NFXF Executive Director Hilary Rosselot and Advocacy Ambassador to the NFXF Board of Directors Dillon Kelley attended the CEO Commission for Disability Employment’s Employment Summit and Hill Day in September. It was an inspiring, action-packed few days, and they are excited to share more about their experience and why it matters to the Fragile X community with you.

June 11, 2024
09 mins read

Dillon Kelley, Advocacy Ambassador to the NFXF Board of Directors, shares his experience at the 2024 NFXF Advocacy Day events.

November 14, 2023
07 mins read

The November 2023 issue of the Fragile X Advocacy Newsletter! Please read and share it with your members of Congress!

August 1, 2023
07 mins read

NFXF board member Jed Seifert represented the NFXF at the CEO Commission’s Hill Day and shared his reflections on this powerful experience.

July 19, 2023
06 mins read

Updates on our 2023 Asks, current letters of support, legislation that has been introduced, and legislation we are monitoring.

February 24, 2023
05 mins read

NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine.

January 11, 2023
13 mins read

NFXF team member Missy Zolecki shares her recent experience as a consumer reviewer for congressionally directed federal funding for Fragile X research.

May 27, 2020

Gregg Harper, Fragile X dad to Livingston and a former five-term congressman, gave an inspirational keynote speech to kick off the first two days of the conference.