National Fragile X Advocacy Day (banner-borderless)

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  • Representative Rush Holt w NJ Advocates (2)
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  • Representative Rush Holt w NJ Advocates (2)
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Please Join Us!

National Fragile X Advocacy Day is an annual event sponsored and organized by the National Fragile X Foundation. It takes place in early March each year when Congress is considering the federal budget for the following year. Parents and family members impacted by Fragile X-associated Disorders are encouraged to take part in this powerful experience that provides a unique opportunity to let your voices be heard in Washington, DC. We urge you to join us in our legislative advocacy effort. Rest assured that your voices, individually and collectively, will be heard loud and clear in the halls of Congress.

Let Your Voices Be Heard!

In just a few short years the modest investment that the NFXF has made in advocacy activities and the monumental effort of our advocates have resulted in nearly 10 million dollars in new investment by the federal government in Fragile X research and programming at the Centers for Disease Control (CDC) and Department of Defense and a near doubling (from ~$15M to ~$29M yearly) in existing research programs at the NIH.

Your participation as a Fragile X Advocate makes a difference!

If you are on twitter please feel free to use the hashtag #NFXFAD

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