The following is a personal blog post written by Melissa Welin, Co-Founder of the Fragile X LINKS Group of Eastern Massachusetts giving an introduction to Advocacy Day through the eyes of a first time advocate. [...]
Source: Department of Defense: Congressionally Directed Medical Research Programs Andrew Selinger The dream of every parent is for each of their children to be happy and healthy. For Andrew Selinger, that dream is bittersweet. His [...]
By Gail Heyman It was an exciting weekend in Washington, DC when Scott Heyman joined his cousin, Allison Gordon, for the 2011 Audi Best Buddies Challenge. They participated in the 100K bike ride, [...]
Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness. Guests [...]
When their son Matthew was diagnosed with Fragile X at the age of 14 months Michele & Paul Kaplan's world crumbled. Thankfully, they were able to attend the International Fragile X Conference in Atlanta two [...]
We have a friend in Italy named Richard Bennett who participates in slot car racing for Team Fragile X. Check out the sweet FX custom-designed Lancia Stratos. An earlier design for this car was used [...]
Joe Wainwright and Eric Sheerin share a bond and now a cause. The Pinehurst, NC, recent college graduates are leaving on a cross-country bike ride June 1 to raise awareness and money for the National [...]
