| Books
and Pamphlets
The
Fragile X Child. (1992).
B.B.Schopmeyer & F. Lowe
($39.95 plus $5.25 shipping).
Singular Publishing
Group, 4284 41st St.
San Diego, CA 92105-1197
(1-800-521-8545)
Educating
Boys with Fragile X
Syndrome. (1994).
C. A. Spiridigliozzi,
A. M. Lachiewicz, C. S., MacMurdo,
A. D. Vizoso, S. M. O'Donnell,
A. McConkie-Rosell, & D. J. Burgess
($10, checks to DUMC)
(919-684-5513).
Gail Spiridigliozzi, Child Developrnent
Unit Box 3364, Duke University
Medical Center, Durham, NC 27710
Behavior
and Development in Fragile X Syndrome. (1994).
E. M. Dykens, R. M. Hodapp,
& J. F. Leckman.
Sage Publications
2455 Teller Road
Thousand Oaks, CA 91320
A Medication
Guide for Fragile X
Michael R.Tranfaglia. ($25).
FRAXA Research Foundation
P.O. Box 935
West Newbury, MA 01985
(978)462-1866
E-Mail: info@fraxa.org
Fragile
X Syndrome:
Diagnosis, Treatment and Research, Second
Edition. (1996)
R. J. Hagerman & A. Cronister ($35)
Johns Hopkins University Press,
2715 N. Charles St.
Baltimore, MD 21218-4319
(410-516-6956)
Fragile:
Handle with Care
Understanding Fragile X Syndrome. (1996).
M. Braden ($25).
Avanta Publishing Company
75 South Elliot St.
PO. Box 17023
Chapel Hill, NC 27514
(919-967-0322)
Articles
Hagerman,
R. J. (1997).
Fragile X syndrome: Meeting the challenges
of diagnosis and care. Comtemporary Pediatrics,
14(3), pp. 31-59.
Bailey,
D.B., & Nelson, D. (l995).
Fragile X Syndrome. Mental
Retardation and Developmental
Disabilities Research Reviews, 1(4).
Special issue on fragile X syndrome.
Freund, L. 5. (1994).
Diagnosis and developmental issues for young
children with fragile X syndrome. Infants
and Young Children, 6(3), PP. 34-45.
Mazzocco, M., &
O'Connor, R.
Fragile X Syndrome: A guide for teachers
of young children. Young Children. (November
1993), Pp. 73-77
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Internet
Links, Resource Centers, Agencies
Conquer
Fragile X Inc.
P.O. Box 128
Palm Beach, FL 33480
Telephone 561-833-3457
Fax: 877-275-1192
E-Mail: mail@cfxf.org
FRAXA
45 Pleasant St.
Newburyport, MA. 01950
Phone: (978)462-1866
Fax: (978)463-9985
E-Mail:
info@fraxa.org
Website: www.fraxa.org
National Fragile
X Foundation
P.O. Box 37
Walnut Creek, CA 94597
Phone 1: (800)-688-8765
Fax: (925)938-9315
E-Mail: NATLFX@FragileX.org
Website: http://www.FragileX.org
OMIM
(Online Mendelian Inheritance in Man) database
is very comprehensive and written for scientists.
Click
Here
Fragile
X Research Foundation of Canada
167 Queen Street West
Brampton, Ontario
Canada • L6Y 1M5
E-Mail: NATLFX@FragileX.org
Web Site: www.fragile-x.ca
National Fragile X Foundation
(US)
P.O. Box 37
Walnut Creek, CA 94597
Local Telephone: 925-938-9300
Telephone (toll-free): 800-688-8765
Fax: 925-938-9315
Web Site: www.fragilex.org
Email: NATLFX@FragileX.org
Fragile X Association
of Germany
24576 Bad Bramstedt
Goethering 42
Telephone 04192/4053
FAX 07944/411
Web Site: www.frax.de
E-Mail:
verein@frax.de
Policy
Statement of the American College of Medical
Genetics on when and how to test
for fragile X syndrome. Click
Here
MIND
Institute.
Medical Investigation of Neurodevelopment
Disorders
Parent
to Parent of Miami
A Community Parent Resource Center for families
who have children and adults with disabilities
Dutch association of parents
of children with
Fragile X www.fragielex.nl
To learn more about Dr. Karen
Pape's TASC approach to approach to treatment
and interventions, check out her website
at: www.tascnetwork.net .
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