Fundraising
Cookbook
As a fundraiser
for Conquer X Foundation, Randy Green, Parent
Group Leader, is leading a project to publish
a cookbook filled to the brim with the best recipes
from Fragile X families throughout the world.
We expect to have this cookbook ready before Mother's
Day 2001.
Here is the information for submitting
recipes. You can submit as many recipes as you
want, though they may not all be used.
- Send recipes to fxrecipes@yahoo.com
- Send only one recipe per e-mail.
- Indicate the category of the recipe.
- Indicate the recipe title.
- Use the abbreviations below for the ingredient
measurements.
- In the METHOD give specific instructions
for preparing. Remember to include the temperature
to cook it at and the number of servings.
- Don't forget to include your name and your
state (or country) at the end of the recipe,
which will be printed with the recipe
RECIPE CATEGORY
Appetizers - Beverages - Soups - Salads - Vegetables
- Main Dishes - Breads - Rolls - Deserts - Miscellaneous
RECIPE TITLE
Please use the following abbreviations: c., tsp.,
pkg., qt., pt., oz., lb.
SUBMITTED BY:
Please include the state (or country) where you
live, which will be printed on the recipe
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CFXF
- Upcoming Events
JOINT CFXF - FRAXA FUNDRAISER ON THURSDAY,
OCTOBER 19TH
Conquer Fragile X Foundation will join with FRAXA
Research Foundation in a joint fundraising event
to benefit both groups. It will be held at the
Green Valley Country Club, Lafayette Hill, Pennsylvania
and will be attended by more than 350 individuals.
The featured activity will be a fashion show provided
by SAKS Fifth Avenue, and there will be a broad
range of auction items including accommodations
at the Aspen Club and free airline tickets donated
by US Air. Our own Kathy Doring, has made up some
very special baskets filled with delectables and
other items, and was able to arrange for gift
items donated by Disney World to be sent up for
the auction. Randy Green also has provided some
sports valuables for the auction. This entire
event has been coordinated by Cristy Hollin, a
member of the Board of Directors of FRAXA, and
Harris Hollin. The chairpersons are: Marla &
Robert Friedman, Nicole & Todd Kendall, Jamie
& Warren Klien. The chairpersons have assembled
an outstanding committee of 150 prominent Philadelphians.
Our thanks to all for this outstanding event.
CFXF DINNER - RECEPTION
AT THE COLONY HOTEL
On Thursday, November 2nd, Mathew Hollin's
grandparents, Harris and Sande Hollin, and Mr.
and Mrs. William Bell, will host a reception and
dinner for Fragile X families and research supporters,
which will be held at the beautiful
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landmark
hotel, The Colony Hotel, on Palm Beach. Several
Congressional legislators representing Florida
have been invited and, hopefully, will be able
to join us.
Outreach to Fragile X families in the area has
become an important part of our efforts and this
occasion will introduce many of these families
to each other, and let them know they are not
alone, that "help is on the way".
CFXF SPEAKS TO HONOR SOCIETY
of FLORIDA INTERNATIONAL UNIVERSITY
On Wednesday, November 29th, Parent Group
Leaders, Wende Banks and Randy Green will represent
Conquer Fragile X Foundation which was invited
to address the Honor Society of the Occupational
Therapy Program at Florida International University
in Miami. All students on campus will be invited
to the presentation
Visiting Colleagues
The American Society of Human Genetics met in
Philadelphia October 3rd - 6th. Harris Hollin
and son, Mitchell Hollin, met with CFXF Scientific
Advisor, Dr. Giovanni Neri, of the Catholic University
in Rome and his colleague, Pietro Chiurazzi, M.D.,
who were attending the conference. Also attending
the Conference was Dr. Ruth Gershoni-Baruch of
Ram Bam Hospital in Haifa. She and Harris had
a good meeting. She will join our family to help
find a cure.
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