Harris Hollin



Harris Hollin
Founder, CFXF
Emeritus Director, NFXF

BOARD OF ADVISORS
Martin Blackman
New York, NY
Jennifer Jaques
London, England

Elissa Boory
Cherry Hill, NJ

Nick C. Jones
Marietta, GA

Jeffrey Cohen
W. Bloomfield, MI

Ray G. Kalil
Nashville, TN

Ofer David
Haifa, Israel

Joseph Kerzner
Toronto, Ontario, Canada

Rosalee Davison
Baltimore, MD

Allen Mason
Palm Beach, FL
Sheila Engelstein
Palm Beach, Florida
Alan H. Miller
Palm Beach,FL

Marti Gammon
Miami, FL

Moshe Modai
Tel Aviv, Israel

Randy Green
Pembroke Pines, Florida

Asher Naim
Jerusalem, Israel

Kimberly Grimmel
Deerfield Beach, Florida

Samuel J. Rosenfeld
Chevy Chase, MD

Joseph Gurwin
Great Neck, NY

Phyllis Siegel
Owings Mills, MD

Arnold J. Hoffman
Palm Beach, FL
Vi Werner
Minneapolis, MN
 

PARENTS CONRNER (cont.)

of joy appeared in the Graduate Section. It was a day of absolute cheer. He was reading and writing and playing sports as best as he could and was proud of every accomplishment. Almost like every “normal” student. The road is longer and the winding is harder. But, the finish line is even more rewarding. Now, I had to plan his life as an adult. My job as mother, unlike the mother of another student in a normal school, wasn’t over yet.

I started to realize that I needed to scope the area, and find a day program for special adults. One that would allow my young man to continue learning and expanding and not sit in front of a television set watching Three Stooges movies until retirement age. I wanted a program that would teach David “adult stuff ” like shopping at Wal-Mart, counting the change, typing on a computer, washing the dishes (a very, very important task). I took a couple of days off from work and drove around the area and visited several different places and was surprised at how little and how much there was to offer in different sites. I did find the program he attends now and I am happy to say that when David comes home for the weekends, I see that he is becoming a young man. When he’s here, he helps with chores around the house, practices his personal hygiene and even butters his own bread!

Of course, I can’t say that I’m looking forward to David’s college graduation, his wedding, my first grandchild or any event that other parents might be anticipating. But, and this is a big, big but, David is becoming a gentleman. He holds the door open for those women who are accompanying him to a restaurant. Or, tells a funny joke, or, shows concern for others when they are not feeling well or crying at a sad movie. I can say with an open heart that I am so very proud of my son but just as important to me, I am proud of how I raised him also. I felt guilty that I “gave” him Fragile X Syndrome but I know now that I am not responsible for this situation. However, I am responsible for the successful young man my son has become. I showed David the most important thing a parent of any child could teach, love. People used to ask me all the time when he was very young, “Why do you let your son call you by your name?” I realized that David heard everyone else call me “Sharon” and that’s how he knew me. David knew I was Sharon but that I was his mother foremost. I just wanted David to know how to say, “Please”, “Thank you”, and “Excuse me”. Everything else was gravy as far as I was concerned.

Everyone who meets and gets to know David grows to love him. And every drop of love shown to him has me love him more and more every day. That love will help him grow more and more as he matures and will help allow me to shine in my middle age as well as any other parent of any other adult child. David has a wonderful heart and is heading for a wonderful adulthood. I can hardly wait for tomorrow.

 

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Harris Hollin, Founder ~ Karen Fay, Past President
PO Box 37 ~ Walnut Creek, CA 94597
Tel: 925-938-9300 x1
Fax: 925-938-9315
Email:natlfx@fragilex.org
Web: www.fragilex.org

NFXF is a not-for-profit tax exempt 501c3 organization
Tax ID No 84-0960471
CFXF is a not-for-profit tax exempt 501c3 organization
Tax ID No 65-0910605