Harris Hollin



Harris Hollin
Founder, CFXF
Emeritus Director, NFXF

PUBLISHED FOR FRIENDS OF CONQUER FRAGILE X FOUNDATION
Spring 2004 Newsletter

MESSAGE FROM THE PRESIDENT

Since I last wrote you, I have been keeping our Board of Directors and Board of Advisors very busy here in Palm Beach. I have been working with each of these bodies to be sure that CFXF has their support in all areas so that we can move ahead with our new grant programs, naming opportunities and continued growth.

We have launched a series of three new grant programs, while renewing our principal investigator program. Each new offering is designed to address a specific need within the International Fragile X Community. Our goal is to continue to foster and encourage collaborations among researchers worldwide, and a new objective is to create opportunities for new researchers to join the fragile X research community, and encourage projects in labs that currently have no fragile X work on going. These new elements of our funding choices have been implemented in response to the input our Scientific Advisory Board has provided us over the past months. We look forward to a very exciting series of applications.

On February 11, 2004 CFXF held a very special luncheon meeting in Palm Beach to roll out our new grant program and to introduce CFXF naming opportunities for the first time. Read about CFXF's very first named research award, the Kagan Charitable Trust Fragile X Short-Term Fellowship, named by the Elliott Harris family in honor of his grandson, Joshua Gammon, son of CFXF Advisory Board member Marti Gammon and her husband Tom. We look forward to working with the Harris and Gammon families in the coming year to ensure that this short-term fellowship is awarded to a talented researcher.

A sincere thank you to all those who joined us in Palm Beach on February 11, and to all of you who lend us your support from many places all over the world. Each and every donation we receive is very much appreciated. I hope that you will read more about our new naming opportunities in this newsletter and consider one of these options as a way to provide CFXF with your on-going support. Thank you again to each of you.

CFXF GAINS TWO NEW NAMED GRANT OPPORTUNITIES – LAURA ANTAR RECEIVES RICHARD AND ROSALEE DAVISON CONFERENCE TRAVEL AWARD

CFXF is all about stirring things up in the world of fragile X research! Our goal is to bring international expertise to bear on a cure. And, we’ll do just that with our new grant opportunities. The Kagan Charitable Trust Short-Term Fellowship, a gift from the Elliott Harris family in honor of grandson, Joshua Gammon, will send a fragile X researcher to visit and learn from a fragile X project in a different part of the world. Our Richard and Rosalee Davison Conference Travel Award will send scientists to important conferences all around the world to learn and share their knowledge.

Our first recipient of the Richard and Rosalee Davison Conference Travel Fund is Laura Antar, a Ph.D. candidate and MD student at the Rose Kennedy Center of the Albert Einstein College of Medicine. Laura will use her award to travel to and participate in the Gordon Research Conference on Cell Biology Of The Neuron, June 20-25, 2004 at Colby-Sawyer College in New London, NH. The Conference features a significant fragile X section and includes several noted fragile X researchers such as William Greenough of the University of Illinois who will speak on, “Overview: Molecular and Cell Biology of Fragile X Syndrome”, Claudia Bagni, of the University of Rome, who will discuss, “mRNA Translation at Synapses: a Common Role for the Fragile X Mental Retardation Protein and the non coding RNA BC1”, and Gary Bassell of the Albert Einstein College of Medicine, speaking on “RNA Binding Proteins in Synaptic Development, Plasticity and Fragile X”.

Congratulations to Laura and thank you so much to Mr. Harris and the Davisons for taking the lead in this effort. We look forward to announcing our Kagan Charitable Trust Short-Term Fellowship recipient soon.

CFXF HOLDS ANNUAL BOARD MEETING AND LUNCHEON

On February 11, 2004, CFXF held its annual Board Meeting and Luncheon at the Tower Restaurant in Palm Beach. We were fortunate to have many of our families, supporters and researchers attend. CFXF Scientific Advisor Dr. Karen Usdin joined us, as did Dr. Jerry Yin of the University of Wisconsin at Madison and Dr. Gary Bassell of the Kennedy Center at Albert Einstein College of Medicine. Dr. Usdin and Dr. Yin addressed the group, and explained the on-going research in their labs and some of the advances the field has seen in the recent past.

Over 45 CFXF donors, supporters and Board Members attended the luncheon and learned about our newest initiatives. It was a great opportunity for everyone to get together over a wonderful lunch, learn about fragile X and meet some leading fragile X researchers.

 

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Harris Hollin, Founder ~ Karen Fay, Past President
PO Box 37 ~ Walnut Creek, CA 94597
Tel: 925-938-9300 x1
Fax: 925-938-9315
Email:natlfx@fragilex.org
Web: www.fragilex.org

NFXF is a not-for-profit tax exempt 501c3 organization
Tax ID No 84-0960471
CFXF is a not-for-profit tax exempt 501c3 organization
Tax ID No 65-0910605