forums for us to gather our researchers for meaningful discussions and updates. We did just that at a luncheon where we were joined by Dr. Flora Katz of the Fogarty International Institute of the NIH and Dr. Danuta Krotoski, of the National Institute for Child Health and Development. In October, CFX participated for the first time in the annual Society for Neuroscience meeting in San Diego. In collaboration with FRAXA, CFX hosted an informational booth and an evening event within the five day conference.

Here in Palm Beach, we recently held our annual Board of Directors Meeting and immediately after, held our annual Luncheon. Among our many special guests was Dr. Steve Kay

of the Scripps Research Institute, who told us of Scripps’ plans for fragile X research here in their new Palm Beach County facility. We hope to develop research collaborations with Scripps in the near future.

Certainly, the September hurricanes affected us all in very real and different ways. We were unable to get donation reminders out and we know we missed the end of the year deadline for some. We hope that in spite of this, you will still support us. As we work to get our schedule back on track, please remember to be as generous as you can. As always, thank you for your continued support as we move forward.

CFX held its Annual meeting on February 8, 2005 at the Governor’s Club of West Palm Beach and immediately following, the foundation held its annual luncheon. The luncheon is designed not only to honor our supporters, but to re-energize and inspire them and to encourage new supporters to become involved. Guest speakers are from the research or advocate community and foster discussion on relevant Fragile X research topic.

Featured at the Feb. 8 meeting was a brief video about Matthew Hollin, and his family and how they have created a lifestyle that responds to Matthew’s needs. The video features other families who are similarly affected, and who respond admirably to the daily challenges of living with fragile X. These families and all those like them are truly inspirational to us all.

Dr. Steven Kay and his wife, Shelley Halpain, both of the Scripps Research Institute, joined the crowd at the luncheon. The Scripps Research Institute has selected Palm Beach County as the home of its new East Coast campus. Dr. Kay spoke about Scripps’ plans to include fragile X research in its new Jupiter, Florida site. We are delighted to welcome Scripps to our area and look forward to working with Dr. Kay and Dr. Halpain on a fragile X project very soon. Luncheon guests congratulated Harris Hollin on receiving the support of the Fragile X Community to be a nominee to the President’s Commission on Persons with Intellectual Disabilities. This is an honor Harris truly deserves.