Community

Knowing there are others impacted by Fragile X out in the world and sharing your challenges and triumphs is incredibly empowering. We urge you to connect with others – on our forums, on Facebook and Twitter – the advice, personal stories and friends you make will keep you strong, competent and confident in dealing with all things Fragile X.

Likewise, we at the NFXF are here to help provide support and education. Do you have a question? Do you need information?

Please call: (800) 688-8765 from 9:00 AM – 5:00 PM PT

Or Email: treatment@fragilex.org

Wherever you are on your journey, the NFXF has a team of people who are here to  help you in whatever way works best for you!

Faces of Fragile X

Faces of Fragile X is a space that the National Fragile X Foundation has provided for parents and friends to show how those affected by Fragile X are more than their diagnosis. Our hope is to show the many ways that those with Fragile X-associated Disorders are all unique, self-determining individuals. As you browse through our site, keep an eye out for the “Read our Story / Read my Story” link below images. These links will bring you to their story within the Faces of Fragile X section.

LINKS Support Network

LINKing Individuals in Knowledge and Support

You might also consider joining a parent support group member of the NFXF Community Support Network. Many groups organize fun family events as well as educational opportunities in your area. Becoming involved is a great way to meet others!

International Conferences

For the ultimate community-experience, don’t miss our International Fragile X Conference held every other year. Uniquely designed to bring together leading Fragile X experts with families and individuals impacted by Fragile X, this five day event is an essential experience for everyone to learn, laugh, make new friends and reconnect with old friends.