Community

Knowing there are others impacted by Fragile X out in the world and sharing your challenges and triumphs is incredibly empowering. We urge you to connect with others – on our forums, on Facebook and Twitter – the advice, personal stories and friends you make will make and keep you strong, competent and confident in dealing with all things Fragile X.

Faces of Fragile X

Faces of Fragile X is a space that the National Fragile X Foundation has provided for parents and friends to show how those affected by Fragile X are more than their diagnosis. Our hope is to show the many ways that those with Fragile X-associated Disorders are all unique, self-determining individuals. As you browse through our site, keep an eye out for the “Read our Story / Read my Story” link below images. These links will bring you to their story within the Faces of Fragile X section.

LINKS Support Network

LINKing Individuals in Knowledge and Support

You might also consider joining a parent support group member of the NFXF LINKS Support Network. Many groups organize fun family events as well as educational opportunities in your area. Becoming involved is a great way to meet others!

International Conferences

For the ultimate community-experience, don’t miss our International Fragile X Conference held every other year. Uniquely designed to bring together leading Fragile X experts with families and individuals impacted by Fragile X, this five day event is an essential experience for everyone to learn, laugh, make new friends and reconnect with old friends.