NFXF International Fragile X Conference

The NFXF International Fragile X Conference is the premier biennial event for the Fragile X community, bringing together individuals, families, and professionals to learn, celebrate, and empower one another.  

This unique experience is not only educational but also empowering. Sessions will focus on strategies and techniques for supporting individuals living with Fragile X, as well as providing access to emerging research and opportunities.  

This conference brings together the entire Fragile X community. Families, self-advocates, siblings, clinicians, educators, and researchers will attend.

Attending the conference in person offers a powerful opportunity to connect, learn, and engage with members of the Fragile X community who truly understand the journey. You will have the chance to build relationships with other families, self-advocates, clinicians, educators, and professionals in a collaborative and engaging environment where shared experiences and expertise come together.

Being together in person allows for conversations, real-time learning, and connections that often extend well beyond the conference itself. From interactive sessions and informal discussions to networking, the in-person experience fosters collaboration, inspiration, and a strong sense of belonging that is difficult to replicate virtually.

Yes! We will have a virtual option available. The individual cost will be $199 and includes virtual access for one (1) individual to recorded content via the conference app, Whova. Recordings of onsite breakout sessions and prerecorded poster sessions will be available within two weeks after the event via the conference app and will be available for viewing until October 12, 2026. There will not be any opportunity to interact with presenters for recorded sessions.

Yes. Scholarship applications are open through March 20, 2026. Scholarships are made available to assist individuals (parents, self-advocates, siblings, caregivers, and family members) who have not previously attended an NFXF International Fragile X Conference or who might not otherwise be able to attend due to limited financial resources. Depending on the availability of funding, limited scholarships may be available for early-career professionals and/or full-time students who are working in or pursuing a career in the Fragile X field.

Due to low utilization in past years, childcare will not be available this year. We have decided to redirect those resources to enhance programs and services that benefit all conference participants. We appreciate your understanding and remain committed to providing a welcoming and supportive experience for everyone attending the conference.

We will have heavy appetizers on Thursday and Friday evening. We will have a full meal at the Saturday evening celebration (Ticket to the Saturday evening celebration is included with the individual registration, and additional add-on tickets will be available for purchase for non-conference attendees). You are responsible for all other meals; there are a few options within the hotel itself, and several options within close walking distance. Water stations are throughout the hotel and in all meeting rooms.Half-day (ends at 1pm)

The Arthur S. Mintz Memorial Conference Scholarship was established in memory of a kind-hearted, thoughtful man who befriended a young man in his community who has Fragile X Syndrome just because he thought it might be helpful to the family and good for the young man. 

Arthur Mintz (Artie) was the type of person who, when presented with a problem by his friends, would try to help them.  He even went so far as to help a young woman whose family he knew seize an opportunity to attend Julliard when her family could not afford it.  Artie also volunteered his time at a school for “at risk” girls during his frequent trips to Israel doing whatever tasks the school administration needed him to do.  Artie was truly a selfless man and would never take credit nor brag about the deeds he did.  Many stories only became public knowledge in their entirety after Artie’s passing in early 2017, though one was known by most.  It’s the relationship with that young man who has Fragile X Syndrome. 

For 4 ½ years, they spent most Friday’s together after school hours doing whatever the young man wanted to do and, occasionally, something Artie wanted to introduce to the young man’s life.  This relationship developed into something very special for both men but the success stems from Artie’s thirst for knowledge about Fragile X Syndrome.  He asked the family many questions and did his own research.  He began to speak with his many friends in the off chance someone might have additional information which would be helpful to his understanding and/or the family.  In large part, that is why so many in his life knew about the relationship.  Everyone involved recognize Artie’s efforts made a tremendous difference and had a positive impact.     

It is because of this and because those who have been touched by him, wish everyone were fortunate enough to have an Artie Mintz in their life that this scholarship was created.  The Arthur S. Mintz Memorial Conference Scholarship covers the registration and hotel cost of attending the biannual NFXF International Conference.  It will be awarded to families and/or self-advocates who are first time attendees and who, without this scholarship, would be unable to attend.  The conference provides the opportunity to better understand Fragile X Syndrome and related disorders, learn what is happening in research, connect with the greater Fragile X community and make some new friends.  Just like a friendship with Artie, the conference has a positive impact on and makes a difference in the lives of those living with Fragile X.