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The 13th International FX Conference is a five-day educational opportunity for families and individuals impacted by Fragile X and for professionals – physicians, scientists, clinicians, therapists and educators – from the Fragile X and intellectual disabilities fields. The event will be held at the InterContinental Miami. Set in the heart of the city’s thriving financial and business district, this grand downtown Miami hotel offers richly appointed accommodations and breathtaking views of Biscayne Bay. This years event is hosted by the Families for Fragile X in Florida.
Watch the Keynote Addresses Every two years the NFXF invites leading figures in the Fragile X community to share their insights at our international conference. In 2012 those “keynote” presentations were made by Drs. Elizabeth Berry-Kravis, Marcia Braden, Stephen Warren, Kimberly Huber and the NFXF’s own Jayne Dixon Weber. Hear Jayne’s heartfelt tribute to the lessons her son has taught her family, listen to Dr. Warren describe the 70-years of scientific discovery associated with Fragile X and learn about the latest research and intervention strategies from Drs. Kravis, Huber and Braden. Watch all of the . Hosted by ... » FULL ARTICLE
A brief registration process is required to access to all videos. Thursday, July 26, 2012 Keynote Addresses GABA-A, GABA-B, mGluR, MMP – What’s This Mean? Come & See! You are Never Too Old to Wear a Pink Tutu and Other Lessons Our Son Has Taught Our Family Friday, July 27, 2012 Keynote Addresses Hope starts the engine and intervention powers the outcome: Why evidence based intervention is essential... » FULL ARTICLE
Professional photographer Rick Guidotti, of Positive Exposures, shared his beautiful photos of the attendees at the Conference. All rights belong to the National Fragile X Foundation. Feel free to download for personal use. Please contact before republishing.
Congratulations to the 2012 National Fragile X Foundation Awards Recipients! LINKS Leader Award for significant contributions to the awareness of Fragile X (Until 2012 called the Education & Awareness Award) Diane Southard Diane Southard is a determined and well-organized leader who is highly regarded by members of her Fragile X Resource Center of Missouri and the larger Fragile X community. She has contributed in multiple arenas since 2005, including involvement in many successful fundraising and educational events, state and federal advocacy efforts, mentoring for other parents of children with disabilities, and speaking... » FULL ARTICLE
At the 13th International Fragile X Conference we premiered Fragile X Got Talent, a homegrown Fragile X Talent Show!
FOR IMMEDIATE RELEASE Contact: Robert Miller 925-938-9300 firstname.lastname@example.org www.fragilex.org Recent findings regarding Fragile X are being discussed at the 13th International Fragile X Conference in Miami. These include that many of the approximately one million carriers of the Fragile X (FX) gene premutation in the U.S., previously believed to be spared from consequences of the mutation responsible for fragile X syndrome (FXS), appear to be at increased risk for development of several significant and adverse health conditions such as: psychological, neurological and auto-immune problems in addition to the already recognized conditions of: fragile X-associated tremor/ataxia syndrome (FXTAS), a debilitating neurological... » FULL ARTICLE
Hello everyone. I know that many of you are preparing for your trip to the 13th International Fragile X Conference in Miami. This is my 7th conference as executive director but I am as excited now as I was for that first one back in 2000. (Los Angeles) I also know that many of you will not be able to join us this year. For both groups, I want reassure you that we will do our best to see that much of the conference content is made available in the months following the conference. While that doesn’t replace the incredible » FULL ARTICLE
On Saturday night at the conference, there will be a Live Auction with many incredible items and experiences up for bid, including getaways and special visits with world renowned experts. Here are the possible items up for the Live Auction, final selections to be determined on the night of the auction. Fairmont Chateau Whistler (British Columbia) 3-Night Ski Getaway with Airfare from the East Coast for 2 This experience includes 3-night stay in a standard Fairmont room at the Fairmont Chateau Whistler, British Columbia Daily breakfast for 2 $500 Fairmont gift card that can... » FULL ARTICLE
Here are some information about the hotels for this year's conference: InterContinental Hotel Check-in is 4 PM Check-out is 12 noon. Free WiFi for all registered guests of the conference. You will be given a PIN to access in your sleeping and the meeting rooms at check-in. Fitness center is $15 Parking information Parking Available/375 Spaces $36.00 (USD) daily valet parking fee, inclusive of taxes (Overnight) $9 first hour and $5 each additional hour (daytime) Valet Parking Available: $36.00 Hyatt Regency Miami Check-in is 3 PM Check-out is 12 noon. Wifi is 9.99 for 24 hour use in Hyatt hotel. Fitness Center Parking information Overnight $31 Valet parking charges include in and out... » FULL ARTICLE
MySpa at the InterContinental Hotel has graciously offered discounted prices off of their massages for conference goers, and we'd like to share them with you. Because you do have time... please take advantage of our special offers during your conference - MySpa Customized myMassage and Foot Scrub 50 minutes We believe in offering a truly personalized massage experience. After a short consultation, your therapist will provide you with a massage just for you that befits your lifestyle. To conclude the experience, you’ll receive a soothing foot scrub to help eliminate toxins and revive tired... » FULL ARTICLE
Do you plan on watching Mission to Lars with us? We'd like to get a headcount of the number of attendees, so please let us know if you're going by Friday, July 20, 2012! The screening is sponsored by Novartis and popcorn and soda will be served. Special Screening of Mission to Lars Thursday, July 26, 2012 8:00 PM - 9:30 PM in the Grand Ballroom. Screening Sponsored by