- Fragile X-associated Disorders
- Treatment & Intervention
- Support the NFXF
The 13th International FX Conference is a five-day educational opportunity for families and individuals impacted by Fragile X and for professionals – physicians, scientists, clinicians, therapists and educators – from the Fragile X and intellectual disabilities fields. The event will be held at the InterContinental Miami. Set in the heart of the city’s thriving financial and business district, this grand downtown Miami hotel offers richly appointed accommodations and breathtaking views of Biscayne Bay. This years event is hosted by the Families for Fragile X in Florida.
Summer may be a time of R&R in the rest of the world, but our devoted Fragile X fundraisers always seem to use the warm months to heat up their engines and put their creative energies into overdrive. Here are some brief reviews on what they were up to. The Mathias Walk for Fragile X – Bernville, PA
Watch the Keynote Addresses Every two years the NFXF invites leading figures in the Fragile X community to share their insights at our international conference. In 2012 those “keynote” presentations were made by Drs. Elizabeth Berry-Kravis, Marcia Braden, Stephen Warren, Kimberly Huber and the NFXF’s own Jayne Dixon Weber. Hear Jayne’s heartfelt tribute to the lessons her son has taught her family, listen to Dr. Warren describe the 70-years of scientific discovery associated with Fragile
. . . Read More: The Post-Conference Wrap-Up!
A brief registration process is required to access to all videos. Thursday, July 26, 2012 Keynote Addresses GABA-A, GABA-B, mGluR, MMP – What’s This Mean? Come & See! You are Never Too Old to Wear a Pink Tutu and Other Lessons Our Son Has Taught Our Family
. . . Read More: 2012 Keynote Presentations
Professional photographer Rick Guidotti, of Positive Exposures, shared his beautiful photos of the attendees at the Conference. All rights belong to the National Fragile X Foundation. Feel free to download for personal use. Please contact before republishing.
Congratulations to the 2012 National Fragile X Foundation Awards Recipients! LINKS Leader Award for significant contributions to the awareness of Fragile X (Until 2012 called the Education & Awareness Award) Diane Southard Diane Southard is a determined and well-organized leader who is highly regarded by members of her Fragile X Resource Center of Missouri and the larger Fragile X community. She has contributed in multiple arenas since
. . . Read More: Congratulations to the NFXF Awards Recipients
At the 13th International Fragile X Conference we premiered Fragile X Got Talent, a homegrown Fragile X Talent Show! [jwplayer config="webinar" mediaid="7498"]