Foundation

Mission

The National Fragile X Foundation unites the Fragile X community to

  • Enrich lives through educational and emotional support
  • Promote public and professional awareness
  • Advance research toward improved treatments and a cure for Fragile X.

Financial Information

2013

Previous Years

Additional Documentation

General Information

Name:
National Fragile X Foundation
A.K.A.:
“The National”, “The Foundation”, “Fragile X Foundation”
Acronym:
NFXF
Mailing Address:
1615 Bonanza St. Suite 202
Walnut Creek, CA 94596
Physical Address:
1615 Bonanza St. Suite 202
Walnut Creek, CA 94596
Phone number:
(925) 938-9300
Toll Free Phone number:
(800) 688-8765
FAX number:
(925) 938-9315
Hours of operation:
8:30 AM to 5:00 PM Pacific Standard Time, Monday – Friday
Website:
www.fragilex.org
General Email address:
natlfx@fragilex.org
Interim Executive Director:
Jeffrey Cohen
Services:
telephone consultation – free
basic informational packet – free
medical and genetic services referral – free
educational advocacy
legislative advocacy
100 regional service chapters nationally and internationally
family assistance grants
research grants
local, national, and international conference sponsorship
newsletter – fee
educational resources (books, audio, video) – fee
Service Population:
individuals, families, professionals, institutions, and students involved with or impacted by fragile X syndrome
Service Referral:
self or professional
Eligibility
all
Service Area:
National International
Dues paying members:
Over 1000
Annual Contacts:
10,000
Founded:
1984 as a public non-profit 501(c)(3) charitable organization
Funding:
Individual Contributions