FXTAS Clinics

Clinics Specializing in the Treatment of Fragile X-Associated Tremor/Ataxia Syndrome

FXTAS clinics are comprised of doctors (primarily neurologists and movement disorder specialists), therapists, researchers, and other specialists who treat FXTAS by utilizing the best available scientific knowledge about the known causes of FXTAS. While there is currently no cure for FXTAS, specialists may be able to lessen the severity and/or slow the progression of symptoms.

Contacting a Clinic: Please feel free to contact the clinic directly or contact us here at the National Fragile X Foundation for guidance on choosing the most appropriate clinic for your needs.

Also see: U.S. Clinics | International Clinics

U.S. FXTAS Treatment and Research Clinics

The following institutions are members of the NFXF’s International FXTAS Consortium (IFC).

Aurora, Colorado, USA

UC Health
UCHealth Neurology Outpatient Clinic
1635 Aurora Court Anschutz Outpatient Pavilion,
4th Floor
Aurora, CO 80045

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UC Health »
UCHealth Neurology Outpatient Clinic »

Contact
(720) 848-2080
(720) 848-2106
@ying.3.liu@ucdenver.edu

Medical Director
Emily Forbes, DO

Clinical Coordinator
Alan Hall

Chicago, Illinois, USA

Rush University
Rush University FXTAS Clinic
1725 West Harrison, Suite 755
Chicago, IL 60612

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Rush University »
Rush University FXTAS Clinic »

Contact
(312) 563-2900
(312) 563-2124

Medical Director
Deborah Hall, MD, PhD »

Ann Arbor, Michigan, USA

University of Michigan
University of Michigan Fragile X Clinic
4260 Plymouth Road
Ann Arbor, MI 48109

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University of Michigan »
University of Michigan Fragile X Clinic »

Contact
(734) 764-6831
@petertod@umich.edu

Medical Director
Peter K. Todd, MD, PhD

New York, New York, USA

Icahn School of Medicine at Mount Sinai
Fragile X Spectrum Disorder Clinic
1428 Madison Ave.
Atran Building, 1st Floor
New York, NY 10029

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Mount Sinai »
Fragile X Spectrum Disorder Clinic »

Contact
(212) 241-6947
(212) 241-6947
@christi.flores@mssm.edu

Medical Director
Reymundo Lozano MS, MD

Clinical Coordinator
Christy Flores

Research-Only Clinics

Clinics designated as research-only exist exclusively to study potential interventions for FXTAS and patients are only accepted if they meet specific research criteria. While research patients may receive treatment as part of their participation in a research project, it is important that patients confirm the details of their participation with the researchers.

Sacramento, California, USA

UC Davis MIND Institute
Fragile X Research and Treatment Center
2823 50th Street
Sacramento, CA 95817

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UC Davis MIND Institute »
Fragile X Research and Treatment Center »
Genotype-Phenotype Relationships in Fragile X Families »
We are recruiting males and females with the premutation (ages 55-85 years) who are having symptoms of FXTAS.

Contact
(916) 703-0472
@ersantos@ucdavis.edu

Medical Director
Randi Hagerman, MD

Clinic Coordinator
Ellery Santos

Atlanta, Georgia, USA

Emory University School of Medicine, Dept. of Human Genetics
National Fragile X Center at Emory
1462 Clifton Road, Suite 300
Atlanta, GA 30322

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Emory University School of Medicine, Dept. of Human Genetics »
National Fragile X Center at Emory »
Modifiers of FXTAS in Individuals with the Premutation »
We are now enrolling participants in our study called “Modifiers of Fragile X-Associated Disorders” (FX-MOD) study.

Contact
(404) 778-8478
@lisa.shubeck@emory.edu

Center Director
Peng Jin, PhD

Clinic Coordinator
Lisa Shubeck

International Treatment and Research Clinics

Please be aware that clinics outside of the U.S. operate under different rules, regulations, and cultural norms, and services may be provided differently than they are in the U.S. However, the IFC’s Task Force has ensured that each of the member clinics meets the IFC’s minimum standard of having available medical and medication evaluation, prescribing, monitoring, and genetic counseling.