About Us

After parents receive the diagnosis, the first information they usually receive is a pamphlet or print out from the doctor or a website address. Once all that information has been read the next thing it seems it that those parents want to meet other families. As a parent you would like to speak with other parents to maybe share experiences, both good and not so good but also just to know someone else understands and does not need an explanation of what Fragile X is.

The group is being formed to meet that very need for parents to connect. Also with the group it can provide ways of how to promote awareness and advocacy and raise money for research for treatments an ultimately a cure.

Please consider becoming involved so that the group can better meet the needs locally here in Alabama.