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FRAGILE X CLINICS, UNITED STATES AND CANADA
CALIFORNIA
- Stanford University
Behavioral Neurogenetics Clinic
Center for Interdisciplinary Brain Sciences Research
Stanford University
401 Quarry Rd.
Stanford, CA 94305-5795
Medical Director: Allan Reiss, M.D.
Clinic Coordinator: Reiko R. Riley
Email: reikor@stanford.edu
Phone: 650-498-6883
Fax: 650-724-4761
Stramski Children’s Developmental Center
Miller Children’s Hospital / Long Beach Memorial Medical Center
2650 Elm Ave #301
Long Beach, CA 90806
Medical Director: Gary S. Feldman, M.D.
Clinic Coordinator: Surina Geoffroy, PT Program Coordinator
Email: sgeoffroy@memorialcare.org
Phone: 562-728-5034
Fax: 562-782-5051 or 5052
U.C. Davis Health System
U.C. Davis M.I.N.D. Institute Fragile X Research and Treatment Center
2825 50th St. Room 2282
Sacramento, CA 95817
Medical Director: Randi Hagerman, M.D.
Clinic Coordinator: Louise Gane, M.S., Genetic Associate
Email: louise.gane@ucdmc.ucdavis.edu
Phone: 916-703-0238
Fax: 916-703-0240
COLORADO
- Colorado Fragile X Clinic
University of Colorado at Denver, School of Medicine
The Children's Hospital of Denver
Child Development Unit
13123 East 16th Ave, B140
Aurora, CO 80045
Medical Director: Nicole Tartaglia, M.D.
Clinic Coordinator: Susan Howell, MS, MBA
Genetic Counselor, Child Development Unit
Clinic & Research Coordinator, Denver Fragile X Clinic
Email: Howell.susan@tchden.org
Phone: 720-777-8361
Fax: 720-777-7311
In association with:
Developmental Fragile X Centre
Sarah Scharfenaker, MA, CCC
Tracy Stackhouse, MA, OTR
FLORIDA
- The South
Florida Fragile X Clinic – opening
June 25, 2009
Mailman Center for Child Development
1611 NW 12th Ave., Room 5040
Miami, FL 33136
Medical Director: Deborah Barbouth M.D.
Clinic Coordinator: Jessica Zoladz C.G.C.
Email: jzoladz@med.miami.edu
Phone: (305) 243-6383
Fax: (305) 243-3919
GEORGIA
- Emory University School of Medicine
Department of Human Genetics
Fragile X Center
2165 N. Decatur Rd.
Decatur, GA 30033
Medical Director: Jeanne Visootsak, M.D.
Clinic Coordinator: Pat Olney, MS, CGC
Email: polney@genetics.emory.edu
Phone: 404-778-8484
Fax: 404-778-8562
ILLINOIS
- Rush University Medical Center
Fragile X Clinic at Rush
1725 West Harrison St., Suite 718
Chicago, IL 60612
Medical Director: Elizabeth Berry-Kravis, M.D., Ph.D.
Clinic Coordinator: Dorothy Malecki
Email: Dorothy_Malecki@rush.com.edu
Phone: 312-942-4036
Fax: 312-942-4168
INDIANA
- Indiana University School of Medicine
Fragile X Research and Treatment Center at Riley Hospital
702 Barnhill Rd. Room 4300
Indianapolis, IN 46202
Medical Director: Craig Erickson, M.D.
Clinic Coordinator: Call Jennifer Mullett, RN, BC
Email: mullettj@iupui.edu
Phone: 317-274-8162
Fax: 317-278-0609
IOWA
- Fragile X Clinic
Center for Disabilities and Development
University of Iowa Children’s Hospital
100 Hawkins Drive
Iowa City, IA 52242
Medical Director: Dianne McBrien, MD
Clinic Coordinator: Jennifer Johnson, M.S.N., Nurse Manager
Email: jennifer-k-johnson@uiowa.edu
Phone: 319-467-5264
Fax: 319-356-8284
MARYLAND
- Kennedy Krieger Institute
Kennedy Krieger Institute's Fragile X Clinic
3901 Greenspring Ave. Rm. 208
Baltimore, MD 21211
443-923-7600
Medical Director: Walter E. Kaufmann, M.D.
Clinic Coordinator: Lia Boyle
Phone: 443-923-7619
Email: BoyleL@kennedykrieger.org
Fax: 443-923-7696
MASSACHUSETTS
- Children's Hospital Boston
Fragile X Program
300 Longwood Ave. Genetics Department
Fegan 10
Boston, MA 02115
Medical Director: Jonathan Picker, MBChB, MSc, Ph.D.
Clinic Coordinator: Sharyn Lincoln, MS. CGC
Email: Sharyn.Lincoln@childrens.harvard.edu
Phone: 617- 355-4688
Fax: 617- 730-0466
NEW YORK
- New York State Institute for Basic Research in Developmental Disabilities
The Fragile X Center of the George A. Jervis Clinic
1050 Forest Hill Road
Staten Island, NY 10314
Medical Director: W. Ted Brown, M.D., Ph.D. Clinical Geneticist
Clinic Director: Karen Amble, CSW
Clinic Coordinator: Nancy J. Zellers, M.S., C.G.C.
Email: Nancy.Zellers@omr.state.ny.us
Phone: 718-494-5369
Fax: 718-494-5336
NORTH CAROLINA
- Duke University Medical Center
Physical Address:
Fragile X Clinic
Durham Child Development and Behavioral Health Clinic
402 Trent Drive
Durham, NC 27705
Campus Mailing Address:
Box 3364 DUMC
Durham, NC 27710
Medical Director : Ave Lachiewicz, M.D.
Clinic Coordinator: LaNetta McDonald (appointment secretary)
Email: Mcdon053@mc.duke.edu
Phone: 919-668-4468
Fax: 919-668-4496 or 919-668-4555
OHIO
PENNSYLVANIA
- Children's Hospital of Pittsburgh
Fragile X Center
3705 Fifth Avenue
Pittsburgh, PA 15213
Clinic Director: Robert Noll, Ph.D.
Clinic Coordinator: Becky Kronk, CRNP, MSN
Community/family coordinator: Paula Ciliberti, MA
Email: Paula.ciliberti@chp.edu
Phone: 412-692-6538
Fax: 412-692-5679
Website: http://www.chp.edu/CHP/fragilex
- Elwyn Fragile X Center
Genetic Services at Elwyn
111 Elwyn Road
Elwyn, Pennsylvania 19063
Clinic Director: Brenda Finucane, MS, CGC
Clinic Coordinator: Mary Delany, MS, CGC
Email: mary_delany@elwyn.org
Phone: 610-891-2349
Fax: 610-891-2377
Website: www.elwyngenetics.org
TENNESSEE
- Children's Hospital at Vanderbilt
Vanderbilt Fragile X Clinic
Vanderbilt Center for Child Development
3401 West End Avenue, Suite 460 West
Nashville TN 37203
Medical Director: Tyler Reimschisel, M.D.
Contact: Jennifer Hamilton, L.C.S.W.
Phone: 615-936-0282
Fax: 615-936-8064
Website: http://www.vanderbiltchildrens.com/interior.php?mid=4123
WASHINGTON
- Seattle Children's Hospital
4800 Sand Point Way NE
Seattle, WA 98105
Medical Director: Gwen Glew, MD
Ask for the Neurodevelopmental Clinic scheduler
Phone: 206-987-2000
WISCONSIN
- UW-Madison Fragile X Clinic
Waisman Center
1500 Highland Avenue
Madison, WI 53705
Medical Director: Gregory Rice, M.D.
Clinic Coordinator: Lindsay Zetzsche, M.S., Genetic Counselor
Email: lhzetzsche@wisc.edu
Phone: 608-890-0148
Fax: 608-263-3496
CANADA
- Surrey Place Center
Fragile X Clinic
2 Surrey Place
Toronto, Ontario
M5S2C2
Canada
Medical Director: Carlo Paribello M.S.M, M.D.
Email: FXRFC@on.aibn.com
Phone: 416-925-5141 ext 2326 Ask for Ms. Leeping Tao
Fax: 905-453-0095
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