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Clinics for Fragile X Evaluation and Treatment
What is a Fragile X Clinic?
A Fragile X clinic provides individuals and families affected by one or more of the Fragile X-associated Disorders with evaluation and care supported by the latest medical, educational, and research knowledge available. All of the clinics provide medical services (including medication evaluation and consultation) supervised by a MD. Multidisciplinary services and/or referrals such as occupational therapy, speech and language therapy, behavioral therapy and genetic counseling are available within the institutions. Many of the clinics also participate in collaborative research efforts with other Fragile X clinics and professionals. All of the clinics have an emphasis on fragile X syndrome while also providing services and/or referrals for fragile X-associated tremor/ataxia syndrome (FXTAS) and fragile X-associated primary ovarian insufficiency (FXPOI).
How do you select an appropriate Fragile X clinic?
In addition to the information listed below, the National Fragile X Foundation has detailed information on each of the clinics, including
the types of multidisciplinary services offered, how often the clinics meet and other additional services the clinic may provide.
The National Fragile X Foundation encourages you to contact us directly. Our professional staff is prepared to help you choose the most appropriate clinic for your individual and family needs.
Please call us at 800-688-8765.
(The National Fragile X Foundation also maintains a database of Fragile X professionals that are not necessarily associated within a Fragile X Clinic. If you are trying to locate a professional that is
knowledgeable about Fragile X in your area, please call us.)
What is the Fragile X Clinical & Research Consortium?
In 2006, the National Fragile X Foundation organized all of the
US and Canadian clinics into a "Fragile X Clinical & Research
Consortium." The
Consortium has many purposes including the development of a knowledge
base for treatment of difficult cases and the establishment of
a structure for collaborative research efforts, including drug
trials. The National Fragile X Foundation is also working hard
to establish additional clinics throughout the U.S. and to help
existing clinics become more comprehensive in the delivery of
their services.
CLINICS: Click here for a comprehensive listing of all clinics or click on the state name
or Green NFXF Logo to prioritize that state on the resulting list.
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