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Elementary School Age Children with Fragile X Syndrome
What does the Individuals with Education Act (IDEA) offer to school-age children (kindergarten through high school)?
The Individuals with Disabilities Education Act (IDEA) provides for a free, appropriate,
individualized education in the least restrictive environment (that is, as much as possible with children in regular education classes) for children through age 21, or until they graduate from high
school. For children and adolescents with fragile X syndrome, a variety of services and programs should be available.
What happens after early childhood programs end?
Once most children enter kindergarten, they leave the early childhood system for their kindergarten through high school programs. If children have been in early childhood for
three years, they will need a reevaluation before placement decisions are made for elementary school. For children entering special education programs for the first time, an initial evaluation is required.
Are the IEP requirements different for early childhood and school-age children?
No, the IEP still includes the same components. Following the assessment and the multidisciplinary staffing, and once eligibility for special education services is determined,
a meeting to write the Individualized Educational Program (IEP) is held. This may be held at the same time as the staffing following the diagnosis or may be days later (within 30
days of the determination of eligibility for special education).
Gail Harris-Schmidt, Ph.D., CCC-SLP Saint Xavier University Chicago, Illinois
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