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Mission Statement of the National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to
Enrich lives through educational and emotional support,
Promote public and professional awareness, and
Advance research toward improved treatments and a cure for Fragile X.

Board of Directors Katherine Roeders Margaret Israel Serena Lowe Jeffrey Cohen Arlene Cohen Gail Heyman Lynda Canel Don Bailey, Ph.D., President Marty Lang Steve McKee Lisa Kelly Randi Hagerman, MD Joseph Christoff Robby Miller (Executive Director) Scott Canel Michael Kelly Len Abbeduto, PhD - Co-chair, Scientific and Clinical Advisory Committee Ted Brown, MD, PhD - Co-chair, Scientific and Clinical Advisory Committee Mark Gruzin
OUR BOARD OF DIRECTORS
Click the photo above to meet the Board Member or
hover your mouse over a face to identify an individual NFXF board member.

greenlogoSMOUR TRUSTEES CIRCLE greenlogoSM
Our Trustees make sustained contributions to the Foundation
to provide critical and stable funding to support our mission and programs.
Click here to see our current Trustees Circle Honor Roll.

OUR SCIENTIFIC AND CLINICAL ADVISORY COMMITTEE
Click here to meet the scientists, doctors, therapists and educators who advise the NFXF.


 

NFXF Staff
Click on a photo to learn more
Robert Miller Executive Director
Robby Miller
Executive Director		 Liane Abrams, MS, CGC Genetic Specialist
Liane Abrams, MS, CGC
Genetic Specialist		 Phil Campbell Administrative & Program Assistant
Phil Campbell
Administrative & Program Assistant
Annie Daher Development Associate
Annie Daher
Development Associate		 Sam Jacob Assistant Shipping Clerk
Sam Jacob
Assistant Shipping Clerk		 Teddy Palmer Database Specialist
Teddy Palmer
Database Specialist
David Salomon Office Tech
David Salomon
Office Tech		 Linda Sorensen, MS Director of Operations
Linda Sorensen, MS
Director of Operations		 Jayne Dixon Weber Coordinator of Support Services
Jayne Dixon Weber
Coordinator of Support Services

The National Fragile X Foundation: a 7 1/2 minute video CLICK HERE to see complete video  
- with special thanks to the Northern California Fragile X Association

 25th Anniversary Video with the Hagerman's

Annual Report of the National Fragile X Foundation
Independent Auditors Report and Financial Statements

Financial information about the National Fragile X Foundation, including IRS Form 990, can be viewed at www.GuideStar.org by typing "National Fragile X Foundation" into the search box. GuideStar maintains a national database of nonprofit organizations.

The Board of Directors and the staff of the National Fragile X Foundation working on the Strategic Plan, charting the NFXF's vision, goals and tasks for the next three years.

Planning next 3 yrs

Name:

The National Fragile X Foundation

A.K.A.:

"The National", "The Foundation", "Fragile X Foundation"

Acronym:

NFXF

Mailing Address:

PO Box 37, Walnut Creek, California 94597

Physical Address:

1615 Bonanza St. Suite 202 / Walnut Creek, CA 94596

Phone number:

(925) 938-9300

Toll Free Phone number:

(800) 688-8765

FAX number:

(925) 938-9315

Washington, DC office:

National Fragile X Foundation
805 15th St. NW, Suite 700 / Washington, DC 20005
DC Phone: 202-589-2893
DC FAX: 202-312-7401  

Hours of operation:

8:30 AM to 5:00 PM Pacific Standard Time, Monday through Friday

Web page:

FragileX.org or NFXF.org over 300,000 visits annually

e-mail address:

NATLFX@fragilex.org

Executive Director:

Robert M. Miller

Services:

telephone consultation - free
basic informational packet - free
medical and genetic services referral – free
educational advocacy
legislative advocacy
100 regional service chapters nationally and internationally
family assistance grants
research grants
local, national, and international conference sponsorship
newsletter - fee
educational resources (books, audio, video) - fee

Service Population:

individuals, families, professionals, institutions, and students involved with or impacted by fragile X syndrome

Service Referral:

self or professional

Eligibility

all

Service Area:

National International

Dues paying members:

Over 1000

Annual Contacts:

10,000

Founded:

1984 as a public non-profit 501(c)(3) charitable organization

Funding:

Individual Contributions

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The NFXF has been serving the fragile X community since 1984
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