Mission Statement of the National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to
Enrich lives through educational and emotional support,
Promote public and professional awareness, and
Advance research toward improved treatments and a cure for Fragile X. OUR BOARD OF DIRECTORS
Photo from our Arizona meeting March 2007 (not pictured: Mark Gruzin & Scott Canel)
Click the photo above to meet the Board Member or
hover your mouse over a face to identify an individual NFXF board member.

OUR SCIENTIFIC AND CLINICAL ADVISORY COMMITTEE
Click here to meet the scientists, doctors, therapists and educators who advise the NFXF.

OUR STAFF
Mouse over the faces to see the names of the NFXF staff.

The National Fragile X Foundation: a 7 1/2 minute video CLICK HERE to see complete video  
- with special thanks to the Northern California Fragile X Association

To read a profile of the National Fragile X Foundation, featured in the July 2002 issue of Exceptional Parent magazine, please click here:           "Cover photo: General James L. Jones, Commandant of the Marine Corps and his wife Diane, are shown with their daughter Jennifer 27, who was diagnosed with Fragile X Syndrome. As parents and Marine Corps leaders, they have been supporting heightened efforts to help special needs service families." - EP   Click Here to view a 4 minute INFORMATIONAL VIDEO starring Richard Anderson the National Fragile X spokesperson.   NFXF Slide Show Click for PowerPoint file   Name: The National Fragile X Foundation A.K.A.: "The National", "The Foundation", "Fragile X Foundation" Acronym: NFXF     Mailing Address: PO Box 37, Walnut Creek, California 94597 Physical Address: 1615 Bonanza St. Suite 202 / Walnut Creek, CA 94596 Phone number: (925) 938-9300 Toll Free Phone number: (800) 688-8765 FAX number: (925) 938-9315     Washington, DC office: National Fragile X Foundation 805 15th St. NW, Suite 700 / Washington, DC 20005 DC Phone: 202-589-2893 DC FAX: 202-312-7401   Hours of operation: 8:30 AM to 5:00 PM Pacific Standard Time, Monday through Friday     Web page: FragileX.org or NFXF.org over 300,000 visits annually     e-mail address: NATLFX@fragilex.org     Executive Director: Robert M. Miller     Services: telephone consultation - free basic informational packet - free medical and genetic services referral – free educational advocacy legislative advocacy 100 regional service chapters nationally and internationally family assistance grants research grants local, national, and international conference sponsorship newsletter - fee educational resources (books, audio, video) - fee . . Service Population: individuals, families, professionals, institutions, and students involved with or impacted by fragile X syndrome     Service Referral: self or professional     Eligibility all     Service Area: National International     Dues paying members: Over 1000     Annual Contacts: 10,000     Founded: 1984 as a public non-profit 501(c)(3) charitable organization     Funding: Individual Contributions

Annual Report of the National Fragile X Foundation

Financial information about the National Fragile X Foundation, including IRS Form 990, can be viewed at www.GuideStar.org by typing "National Fragile X Foundation" into the search box. GuideStar maintains a national database of nonprofit organizations.

The Board of Directors and the staff of the National Fragile X Foundation working on the Strategic Plan, charting the NFXF's vision, goals and tasks for the next three years.

History of The National Fragile X Foundation's International Conference Series

9th International Fragile X Conference Photos

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