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GET INVOLVED!
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The National Fragile X Foundation provides free information, referrals, and support through a website, toll-free telephone number, email, fax, and quarterly journal. The Foundation funds clinical and
basic science research and legislative advocacy efforts, sponsors and organizes educational seminars and conferences and also works with parent resource groups throughout the US and the world. If you know someone impacted by Fragile X,
you can help us help them. Please Get Involved Today - your efforts can make all the difference!
Become a Member of the NFXF
All members receive four annual issues of our informative, in-depth
journal, the Foundation Quarterly, courtesy email reminders of upcoming NFXF events & activities and a quarterly email newsletter Fragile Xtras with up-to-the-minute details on the latest happenings in the Fragile X community.
Additional membership benefits include significant discounts off the NFXF International Conference registration fees and purchases of FX resources.
Membership Application
Donate to the NFXF
Your tax-deductible contribution will help fund our parent support, education, awareness, research
and advocacy efforts. We operate solely on gifts from individuals and corporations and greatly appreciate every donation, large and small.
The National Fragile X Foundation is a 501(c)(3) nonprofit charitable organization, Tax ID# 84-0960471.
Donate
Become a NFXF-affiliated Parent Contact and/or Organize a Parent Resource Group in Your Area
The NFXF routinely refers individuals and families to our network of Parent contacts and Resource Groups around the US.
Parent Resource Groups
are groups of parents in a local area who organize support meetings, social gatherings and workshops. Leaders of resource groups also agree to be parent contacts. The Foundation does not require local organizations to pay dues to become or remain affiliated, other than that the lead person of each group maintains a current membership. However, the Foundation does request that you and your group engage in fundraising activities to benefit the National Fragile X Foundation. The NFXF staff and development committee co-chairs are both available to assist you with your planning. The Foundation may also wish to organize combination awareness/fundraising events in your community
Parent Contacts are parents who agree to have their phone numbers made available to other parents in their area, especially those with newly diagnosed children. To Learn More
Current Parent Contacts and Resource Groups
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Become a Professional Contact
The National Fragile X Foundation maintains a comprehensive and continually updated database of Fragile X evaluation and treatment clinics in the
United States. Professional Contacts
also include physicians, therapists, educators, and counselors as well as their respective institutions that are currently treating individuals with Fragile X syndrome, Fragile X-associated tremor ataxia syndrome (FXTAS) and/or Fragile X-associated premature ovarian failure (POI).
You can help expand its database of Fragile X professionals by completing the Professionals Database Form or contact the NFXF by phone or email. Registered professionals will receive a complimentary subscription to our Foundation Quarterly journal. To Learn More
Organize a FUNdraiser on Behalf of the NFXF
Join the 'FUN' by organizing or attending a FUN'draising event or activity in your community! Organizing an event is easy and fun with our help. From car washes to gala dinners, we are
pleased to assist you realize your fundraising goals. FUNdraisers' are a great way to raise awareness in your community and the vital funds necessary to fulfill the NFXF Mission.
Contact Us for help getting started with your plans. We can provide you with a FUNdraising Toolkit to make the process 'FUN' !
Become a "Cuber"
The Promise Cube™ Campaign allows highly committed individuals in the Fragile X community to become "Cubers" who encourage family members,
friends and colleagues to financially support Fragile X research. The symbol of that commitment is a Rubik's Cube®" that will be sent to all Cubers. Cubers commit themselves to "filling" each of the Cube's 54
squares with a five-year pledge from donors, known as "Promise Makers.™". To learn more about the Promise Cube Campaign, to become a "Cuber" and recruit "Promise Makers" and/or to make a Promise Cube
Campaign donation please visit the Promise Cube Campaign.
The National Fragile X Foundation: a 7 1/2 minute fundraising video
- Please contact the NFXF to discuss using the video at your event!
Become a NFXF Advocate
Recognizing the critical role played by the federal government in funding scientific research and in establishing service related programs
for individuals and families coping with Fragile X, the NFXF has engaged in ever increasingly successful advocacy efforts since 2003.
We invite you to join us in our legislative advocacy effort. Rest assured that your voices, individually and collectively, will be heard loud
and clear in the halls of Congress. You can participate by joining us in Washington for the next Advocacy Day, or meeting, calling,
writing or emailing your members of Congress in your home state, and/or through a donation to the NFXF to help fund this effort. Your
participation is guaranteed to make a difference and it will help to return much of the power and control that you thought you lost when
Fragile X entered your life. NFXF Advocates receive regular Action Alerts and Advocacy Updates via email.
Register Today!
NFXF Happenings
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