The Central IL FX Resource group was started in Jan of 2006 by parents, Scott and Holly Roos, the parents of two children with Fragile X, Parker and Allison.  After receiving the Fragile X diagnosis in the spring of 2003, Scott and Holly began to research Fragile X and now work together to raise awareness and money to help others living with fragile X syndrome. Holly volunteers her time speaking to local schools, organizations, and colleges to raise awareness and provide education on FX. She also serves as an advocate for parents struggling with the school system. In 2004, the Roos Family partnered up with Andrea Schnarr to coordinate the First "Walk for FX" to be held in Canton, IL. The first walk brought together over 150 walkers and raised over $5,500. The walk is now an annual springtime event. In addition to the walk, the Roos family is now bringing together FX families from Central Illinois on a regular basis, providing support, resource materials, and an understanding environment for families to get together. Because Central IL is so spread out, we would like to meet in a variety of locations to make getting together more convenient for all of our members.