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The Fragile X Society, ignited by the National Fragile X Foundation (NFXF) in the U.S., commenced very small and is still in its growing years. We have seen the snowball effect come live with it. In a short span of time we have grown from 4 to 40 to 400 and beyond.

  • ·In 2005 we held our first seminar to create awareness.
  • ·We moved on to small lectures in medical institutes and in groups of interested professionals and parents.
  • ·In January 2007 we organized an International Conference on Fragile X and Autism. We invited Dr. Randi Hagerman and her team to empower us. It was a unique blend of Indian and foreign professionals. The NFXF provided pamphlets and books and supported the conference in a big way. The conference had over 250 attendees including parents and professionals from all over the country. It was truly an evolution and has motivated a lot more people to help eliminate the ignorance on Fragile X.
  • ·On 22 July 2007 ( National Fragile X Awareness Day), Ms. Meena Singh along with Dr. Madhulika Kabra from Delhi held an awareness talk for parents. It was an excellent meeting and a very good platform to keep the torch burning.

 

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