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 Disability Organizations:

AAIDD - American Association on Intellectual and Developmental Disabilities
http://www.aamr.org/

ARC-USA: State Organizations
http://www.thearc.org/

Beach Center on Families and Disability
http://www.beachcenter.org/

Directory of State Developmental Disabilities Agencies
http://www.nasddds.org/MemberAgencies/index.shtml

President's Committee for People with Intellectual Disabilities (PCPID)
http://www.acf.hhs.gov/programs/pcpid/

VOR
http://www.vor.net

 Fragile X Research & Information:

Carolina Fragile X Project
http://www.fpg.unc.edu

Conquer Fragile X
http://www.fragilex.org/cfxf/

Fragile X Research Foundation of Canada
http://www.fragile-x.ca/default2.htm

FRAXA Research Foundation
http://www.fraxa.org

The M.I.N.D. Institute
http://mindinstitute.ucdmc.ucdavis.edu/

Paul Hagerman Lab at UC Davis
http://wizard1.ucdavis.edu

Stanford University School of Medicine
Center for Interdisciplinary Brain Sciences Research (CIBSR)
http://spnl.stanford.edu/researchproj/fragilex.htm

 Genetic Information

GeneClinics: Fragile X Syndrome University of Washington
http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=fragilex

Genetic Alliance
http://www.geneticalliance.org/

Genetic Counseling and You
http://www.nsgc.org/

Your Genes, Your Health
http://www.ygyh.org/fragx/whatisit.htm

 Resources:

Access To Credible Genetics - How to determine if genetic information can be trusted
http://www.trustortrash.org/

Alliance for Technology Access
http://www.ataccess.org/

Attainment Company
http://www.attainmentcompany.com/xcart/home.php

Centers for Disease Control and Prevention
National Center on Birth Defects and Developmental Disabilities (NCBDDD)

External Partners Group
http://www.cdc.gov/ncbddd/partners/default.htm

The Developmental & Fragile X Resource Centre
http://www.developmentalfx.org/

Disabilityinfo.gov
http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=500

disABILITY Resources on the Internet
http://www.makoa.org/index.htm

Disability Scoop: Developmental Disability News
http://www.disabilityscoop.com

Easter Seals
http://www.easterseals.com/site/PageServer

EP Magazine - Exceptional Parent
http://www.eparent.com

Family Center on Technology and Disability (FCTD)
http://www.fctd.info/

Family Village
http://www.familyvillage.wisc.edu/

IEP Publishing
http://www.ieps.net/

Living with Fragile X
http://www.livingwithfragilex.com

National Association of Parents with Children in Special Education
http://www.napcse.org/

National Center on Birth Defects and Developmental Disabilities
http://www.cdc.gov/ncbddd/single_gene/fragilex.htm

National Dissemination Center for Children with Disabilities
http://www.nichcy.org/

National Foundation of Dentistry for the Handicapped
http://www.nfdh.org/

OSEP: Office of Special Education Programs - U.S.
http://www.ed.gov/about/offices/list/osers/osep/index.html

Parent Training & Information Centers by State
http://www.angelfire.com/ny/Debsimms/pti.html

Sensory Resources Inc.
http://www.sensoryresources.com

Sibling Support Project
http://www.siblingsupport.org/

Social Security Administration
Benefits For People With Disabilities
http://www.ssa.gov/disability/

Special Education Resources on the Internet (SERI)
http://seriweb.com/

Special Education Law & Advocacy - Wrightslaw
http://www.wrightslaw.com

Special Needs Alliance: Special Needs – Special Attorneys
http://www.specialneedsalliance.com/home.aspx 

Special Olympics
http://www.specialolympics.org/Special+Olympics+Public+Website/default.htm

The State of the States in Developmental Disabilities
https://www.cu.edu/ColemanInstitute/stateofthestates/

Your Day Away: support for parents of children special needs worldwide
http://www.yourdayaway.com/

STOMP-Specialized Training of Military Parents
http://www.stompproject.org/

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Early intervention, occupational and speech therapy can help those with fragile X
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