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Disability Organizations:
AAIDD - American Association on Intellectual and Developmental Disabilities http://www.aamr.org/
ARC-USA: State Organizations http://www.thearc.org/
Beach Center on Families and Disability http://www.beachcenter.org/
Directory of State Developmental Disabilities Agencies http://www.nasddds.org/MemberAgencies/index.shtml
President's Committee for People with Intellectual Disabilities (PCPID) http://www.acf.hhs.gov/programs/pcpid/
VOR
http://www.vor.net
Fragile X Research & Information:
Carolina Fragile X Project
http://www.fpg.unc.edu
Conquer Fragile X http://www.fragilex.org/cfxf/
Fragile X Research Foundation of Canada http://www.fragile-x.ca/default2.htm
FRAXA Research Foundation http://www.fraxa.org
The M.I.N.D. Institute http://mindinstitute.ucdmc.ucdavis.edu/
Paul Hagerman Lab at UC Davis
http://wizard1.ucdavis.edu
Stanford University School of Medicine Center for Interdisciplinary Brain Sciences Research (CIBSR) http://spnl.stanford.edu/researchproj/fragilex.htm
Genetic Information
GeneClinics: Fragile X Syndrome University of Washington http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=fragilex
Genetic Alliance http://www.geneticalliance.org/
Genetic Counseling and You http://www.nsgc.org/
Your Genes, Your Health http://www.ygyh.org/fragx/whatisit.htm
Resources:
Access To Credible Genetics - How to determine if genetic information
can be trusted
http://www.trustortrash.org/
Alliance for Technology Access
http://www.ataccess.org/
Attainment Company http://www.attainmentcompany.com/xcart/home.php
Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities (NCBDDD)
External Partners Group http://www.cdc.gov/ncbddd/partners/default.htm
The Developmental & Fragile X Resource Centre http://www.developmentalfx.org/
Disabilityinfo.gov http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=500
disABILITY Resources on the Internet http://www.makoa.org/index.htm
Disability Scoop: Developmental Disability News http://www.disabilityscoop.com
Easter Seals http://www.easterseals.com/site/PageServer
EP Magazine - Exceptional Parent http://www.eparent.com
Family Center on Technology and Disability (FCTD) http://www.fctd.info/
Family Village http://www.familyvillage.wisc.edu/
IEP Publishing http://www.ieps.net/
Living with Fragile X http://www.livingwithfragilex.com
National Association of Parents with Children in Special Education http://www.napcse.org/
National Center on Birth Defects and Developmental Disabilities http://www.cdc.gov/ncbddd/single_gene/fragilex.htm
National Dissemination Center for Children with Disabilities
http://www.nichcy.org/
National Foundation of Dentistry for the Handicapped http://www.nfdh.org/
OSEP: Office of Special Education Programs - U.S. http://www.ed.gov/about/offices/list/osers/osep/index.html
Parent Training & Information Centers by State http://www.angelfire.com/ny/Debsimms/pti.html
Sensory Resources Inc.
http://www.sensoryresources.com
Sibling Support Project http://www.siblingsupport.org/
Social Security Administration Benefits For People With Disabilities http://www.ssa.gov/disability/
Special Education Resources on the Internet (SERI) http://seriweb.com/
Special Education Law & Advocacy - Wrightslaw http://www.wrightslaw.com
Special Needs Alliance: Special Needs – Special Attorneys http://www.specialneedsalliance.com/home.aspx
Special Olympics http://www.specialolympics.org/Special+Olympics+Public+Website/default.htm
The State of the States in Developmental Disabilities https://www.cu.edu/ColemanInstitute/stateofthestates/
Your Day Away: support for parents of children special needs
worldwide
http://www.yourdayaway.com/
STOMP-Specialized Training of Military Parents
http://www.stompproject.org/
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