Linking Individuals Nationally in Knowledge and Support
A program of the

NFXF LINKS Groups and Parent Contacts Directory
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Please Contact Us if you have difficulty reaching anyone listed on this directory.

ALABAMA

• Parent Contact: Birmingham
  Leanne and Tim Rau
  Tel: 205-978-4230 or 205-978-4230
  E-Mail: TimandLeanne@Gmail.com 
  
• Fragile X Association of Alabama
  Matt and Beth Rhodes
  Tel: 205-664-7534
  E-mail: matt_rhodes@mindspring.com
  Web: http://www.fxalabama.org/
• Gulf Coast Region FX LINKS Group
  Jillian Ransom
  Tel:251-607-9331
  E-mail: FragileXsupport@gmail.com

ALASKA

• Parent Contact: Sitka
  Seimeen Bone
  Home: 907-747-7659
  E-Mail: indiecountrymusic@gmail.com 
  

ARIZONA

• Parent Contact: Scottsdale
  Anne Souder
  Tel: 480-483-6803
  
• Parent Contact: Tucson
  Denise Robb
  Home: 520-742-4165
  E-Mail:  DRobb62@quest.net

CALIFORNIA

• Fragile X Center of San Diego
  John & Nicole Schweizer
  Toll-free: 877-300-7143
  E-Mail: info@fragilexsandiego.org
  Web: http://www.fragilexsandiego.org
  
• Fragile X Association of Southern California
  Janet Rivera
  Tel: 818-754-4227
  E-Mail: info@fraxsocal.org
  Web: http://www.fraxsocal.org
  
• Central Valley Fragile X Resource Group
  Andrew & Cari Wheeler
  Home: 559-645-6616
  E-mail: abcmwheeler@yahoo.com
  
• Northern California Fragile X Association
  Web: http://www.fragilex.org/html/nocfxa.htm 

COLORADO

• Denver Fragile X Resource Group
  Kelly Lambert
  Home: 303-617-6244
  E-Mail: kellylamb@msn.com
  
• Colorado Springs Fragile X Resource Group
  Ginger Stringer
  719-391-2249
  E-Mail: gingerstringer@yahoo.com
  
• Parent Contact: Greeley
  Tanya Flores
  Home: 970-301-9259
  E-mail: thegreatissue@hotmail.com

CONNECTICUT

• Fragile X Society of Connecticut
  Tammy & Andy Selinger
  Home: 860-233-1904
  E-Mail: xfamily@aol.com
  Web: http://www.fragilex.org/html/ct_home.htm

FLORIDA

• Parent Contact: Palm Beach - Broward Counties
  Randy Green Home: 954-433-5413
  E-Mail: mathmattx123@yahoo.com
  
• Parent Contact: Miami-Dade Counties
  Rosie Perez Home: 305-412-9339
  E-Mail: randmperez@comcast.net
  
• Florida Fragile X Families Foundation
  Michelle Kaplan: 305-232-4854
  E-mail: michelemkaplan@bellsouth.net
  Web: www.floridafragilexfamilies.org/home.html
• Gulf Coast Region FX LINKS Group
  Jillian Ransom
  Tel:251-607-9331
  E-mail: FragileXsupport@gmail.com

GEORGIA

• Fragile X Association of Georgia
  Emory Fragile X Clinic
  Tel: (404) 778-8484 (Pat Olney at the Fragile X Emory Clinic)
  E-Mail: polney@genetics.emory.edu
  Parent contacts:
  E-Mail: frax@bellsouth.net (Gail Heyman)
  E-Mail: jschatte@bellsouth.net (Janet Schatten)
  Web: www.fragilex.org/html/georgia.htm

IDAHO

• Parent Contacts: Boise
  Lynne Pekuri
  Home: 208-376-8073
  E-mail: Lynnepekuri@aol.com
  Karina Casebolt
  Home: 208-571-6268 E-mail: karina_casebolt@yahoo.com
  

ILLINOIS

• Central Illinois Fragile X Resource Group
  Holly Roos
  Tel: 309-647-4864
  E-mail: CentralILFX@yahoo.com
  Web: http://www.fragilex.org/html/illinois.htm
  
• Fragile X Resource Group of Greater Chicago
  Avis Primack/Gail Harris-Schmidt, Ph.D.
  Tel: 847-465-1245 (Avis)
  Fax: 773-779-9061 (Gail)
  E-Mail: fragilexchicago@comcast.net
  Web: http://www.fragilex.org/html/chicago.htm

INDIANA

• Indiana Fragile X Resource Group
  Catherine Frey-Christoff & Joey Christoff
  (260)459-5824 or (260)672-3858
  E-Mail: CBFrey@hotmail.com or Joeychristoff@hotmail.com

IOWA

• Parent Contacts: Iowa
  Tricia & Joe Judge
  Home: 563-359-8174
  E-Mail: thejudges@mchsi.com 

KENTUCKY

• Parent Contact: Bluegrass
  Lynne Wolfe
  Tel: 502-863-6653
  E-Mail: wolfepac@bellsouth.net
  
• Fragile X Resource Group of Greater
  Cincinnati-Northern Kentucky
  Joe Garera
  Home: 859-342-8150
  Parent Contact: Northern Cincinnati Area: Melissa Courtney
  Phone: 513-459-2176
  E-Mail: cvgfx@insightbb.com

LOUISIANA

• Louisiana Fragile X Resource Group
  Kimberly Soileau
  Tel: 225-683-8006 
  Cell:  225-244-0871
  E-Mail: nks@iol27.com
  Parent Contact: Baton Rouge
  Patricia Kisamore
  Tel: 225-769-6145
  E-mail: Pookins@bellsouth.net

MAINE

• Maine Fragile X Resource Group
  Cheryl Peterson
  Home Phone: 207-224-2035
  E-Mail: mainefragilex@yahoo.com
  Web: www.fragilex.org/html/maine.htm

MASSACHUSETTS

• Fragile X Resource Center of Western Massachusetts
  Denise Devine
  Home: 413-584-1859
  E-Mail: FRXRCofWMASS@aol.com
  Web: http://www.fragilex.org/html/wm_home.htm
  
• FraX'em (FX Resource Group of E. MA)
  Sandra Morse
  Home: 978-969-2809
  E-Mail: mafxmom01915@comcast.net
  Web: http://communities.msn.com/TheWorldofFragileX

MARYLAND

• Maryland Fragile X Resource Group
  Kristen Head
  Home: 301-774-1069
  E-Mail: kmhead129@aol.com
  Web: http://www.mdfragilex.org

MICHIGAN

• Fragile X Association of Michigan
  Laureen Majeske
  Home: 586-978-9079
  E-Mail: fraxmich@hotlinemail.com
  Web: http://www.fragilex.org/html/michigan.htm
  
• Michiana Fragile X Resource Group
  Parent Contact: (Northern IN & Soutthern MI)
  Jen Kalb
  Tel: 574-825-7456
  E-mail: kalbja@yahoo.com

MINNESOTA

• Fragile X Resource Group of Twin Cities
  Parent Contact: (Minneapolis/St. Paul)
  Eva Munker and Dave Taylor
  Tel: 763-208-1584
  E-mail: muenker@comcast.net
  Web: http://www.fragilex.org/html/minneapolis.htm

MONTANA

• Fragile X Resource Group of Montana
  Mary DeBernardis
  Home: 406-763-4268
  E-Mail: gatewaymary@gmail.com

MISSISSIPPI

• Parent Contact: Northern Mississippi
  Jamie Marshall
  Tel: 901-337-0208
  E-mail: Jnsmarshall@comcast.net
  Sheri Dickerson Tel: 662-587-0438
  E-mail: Sherid@ripleycable.net or Dickersons@ecowater.com
  
• Gulf Coast Region FX LINKS Group
  Jillian Ransom
  Tel:251-607-9331
  E-mail: FragileXsupport@gmail.com

MISSOURI

• Fragile X Resource Center of Missouri
  Diane Southard
  Tel: (314)835-9673
  Fax: 314-997-2301
  E-Mail: southard5@sbcglobal.net
  Web: http://www.fragilex.org/html/missouri.htm

• The FX LINKS Group of Kansas City (Western Missouri)
  Tim and Angela Lunceford
  Tel: (816) 461-3577
  Email: talunc4d@swbell.net   
  Web: http://www.fragilex.org/html/kansas_city.htm

NEBRASKA

• Nebraska Fragile X Families Association and Support Group
  Kelly Randels
  Home: 402-778-5802 Cell: 402-968-3608
  E-Mail: fragilexomahagroup@cox.net
  Web: www.fragileXnebraska.org

NEW HAMPSHIRE

• New Hampshire Fragile X Resource Group
  Debbie White
  Home: 603-329-4632
  E-Mail: nhfragx@yahoo.com 
  Web Site: http://www.fragilex.org/html/new_hampshire.htm

NEVADA

• Parent Contact: Sparks
  Nanette McCall
  Home: 775-331-7248
  E-Mail: 4macs@charter.net

NEW JERSEY

• Fragile X Association of New Jersey
  Paula Fasciano
  Home Tel: 732-591-2497 E-Mail: thefascianos@gmail.com
  Web: www.fragilex.org/html/new_jersey.htm
  Jennifer Keenan (Professional contact)
  Home: 856-985-3257 E-Mail: jencofx1@att.net
  

NEW MEXICO

• Albuquerque Fragile X Resource Group
  Elizabeth Ramey
  Home: 505-565-0695
  E-Mail: e_ramey@msn.com

NEW YORK

• Pogoda Family Fragile X Resource Group
  Parent Contact: (Central, Western and Upstate New York)
  Diane Pogoda
  Home: 585-924-6997
  E-Mail: dpogoda@rochester.rr.com
  Web: http://www.fragilex.org/UpstateNY
  
• Parent Contacts: Westchester
  Stephen and Gwen Jagde
  Home: 914-674-4480
  E-mail: allwsontherun@aol.com
  
• Fragile X Association of New York (Brooklyn)
  Anita Inz
  Home: 718-875-4901
  E-Mail: aainz@aol.com
  Interent: http://www.fragilex.org/html/new_york_city.htm

NORTH CAROLINA

• North Carolina Fragile X Resource Center
  Duke University Medical Center
  Deby Burgess
  Tel: Home: 919-563-5812
  Fax: 919-668-4496
  E-Mail: ncfraxfoundation@mebtel.net
  
• Piedmont Fragile X Resource and Support Group (Winston-Salem, Greensboro and High Point)
  April Boone
  Tel: 336-765-7276
  E-mail: FragX1@yahoo.com

NORTH DAKOTA

• Professional Contact: North Dakota
  Karen Gayton, OTR
  Home Phone: 701-255-9179
  E-mail: dgayton@bis.midco.net

OHIO

• Fragile X Alliance of Ohio
  Leslie Bagdasarian
  Tel: 440-519-1517
  Fax: 440- 519-1518
  E-Mail: fraxohio@adelphia.net
  Web: http://www.fragilexohio.org
  
• Fragile X Resource Group of Greater
  Parent Contact: Cincinnati-Northern Kentucky
  Joe Garera
  Home: 859-342-8150
  Parent Contact: Northern Cincinnati Area
  Melissa Courtney
  Phone: 513-459-2176
  E-Mail: cvgfx@insightbb.com

OKLAHOMA

• Oklahoma Fragile X Resource Association
  Kelly Williams
  Tel: 405-488-8561
  E-mail: kwilliams60@cox.net
  Web: http://www.fragilex.org/html/oklahoma.htm

OREGON

• Fragile X Association of Oregon
  Trudi Sang
  Tel: 503-620-3473
  Fax: 503-620-3473
  E-Mail: trudisang@aol.com
  
• Willamette Valley FX Resource Group
  Parent Contact: Independence
  Rhonda Eatherington
  (503) 838-2201
  E-mail: RhondaEcsumb1@aol.com
  
• Parent Contact: Salem
  Jill Adams
  Home:503-364-9463
  E-mail: adams@meritel.net
  
• Parent Contact: Eugene
  Shereen Stebbins
  Tel: 541-953-4646
  E-mail: Shereenstebbins@comcast.net

PENNSYLVANIA

• Elwyn Training and Research Institute (Pennsylvania)
  Brenda Finucane MS. C.G.C.
  Director, Genetic Services
  Tel: 610-891-2313
  Fax: 610-891-2377
  E-Mail: brenda_finucane@elwyn.org
  Web: http://www.elwyn.org/index.htm
  
• The Pennsylvania Fragile X Support Group
  Jeanne Lutzvitch
  Tel: 484-444-0960
  E-mail: jelizall3@verizon.net
  
• Lehigh Valley Fragile X Resource Group
  Kristin Strauss
  Tel: 610-217-9352
  E-mail: Shelley Koder: lehighvalleyfxs@yahoo.com
• Greater Pittsburgh Fragile X Resource Group
  Bob Dudas
  Tel: 412-831-3702
  E-mail: bobdud@verizon.net
  

PUERTO RICO

• Parent Contact:
  Marcos Colon and Sara Gonzalez
  Tel: 787-287-3791 or 787-447-6005
  E-mail: mcolon@rocpr.net or colonmlc@aol.com

RHODE ISLAND

• Fragile X Families of RI and Southern MA
  Leslie Bobrowski
  Tel: 401-658-1936
  E-mail: lesliebobrowski@yahoo.com

SOUTH CAROLINA

• The South Carolina Fragile X Resource Group
  Roger and Faye Kuperman
  (Lexington, SC)
  803-572-1559
  E-Mail: Roger.Kuperman@wachovia.com
  website: http://www.fragilex.org/html/s_carolina.htm
  
• Carolinas Fragile X Resource Group (SC)
  Greenwood Genetic Center
  Gail Stapleton
  Tel: 888-409-8471
  Fax: 864-455-3095
  E-Mail: gail@ggc.org

SOUTH DAKOTA

• Parent Contact: South Dakota
  Kevin Waterman
  Home Phone: 605-338-6923
  E-mail: waterman@dakota.net
  

TENNESSEE

• Fragile X Association of Tennessee
  Wendy and Bubba Griffin
  Tel: 931.359.1226 and 931.580.1226
  E-mail: yoder@tnweb.com
  

TEXAS

• TEXAS FRAGILE X ASSOCIATION (Dallas/Ft. Worth area)
  Lynda Rogers and Becky Cox
  Tel: 214-536-TXFX
  E-mail: infor@texasfragilex.org or racox59@yahoo.com
  Web: http://www.texasfragilex.org
  
• Fragile X Resource Group of El Paso, TX
  Sandra Gutierrez
  Tel: 915-256-0192
  E-mail: gossboots@sbcglobal.net
  
• NE Texas Fragile X Resource Group
  Jim Bentler
  Tel: 972-475-9523
  E-Mail: jim.bentler@verizon.net

UTAH

• Utah Fragile X Association
  Parent Contact: Salt Lake City area:
  Kathy Mills
  Tel: 801-981-1071
  E-mail: fragilexfamily@gmail.com
  Lori Fuller: Davis County/Northern Utah area
  Tel: 435-257-6902
  E-mail: rayandlori@frontiernet.net
  Parent Contact: Utah County area
  Rachael Gibson
  Tel: 801-754-0606
  E-mail: fxs.bar@gmail.com
  E-mail: rggrafix@qwest.net
  Parent Contact: Unitah Basin area
  Burgandi Dotter
  Home: 435-781-6255
  E-mail: Duane@easilink.com
  

VIRGINIA

• Virginia Fragile X Resource Group
  Parent Contact: Western Region
  Jennifer Keith
  Home: 540-977-4457
  E-mail: vafragilex@yahoo.com
  Web: http://www.fragilex.org/html/virginia.htm
  
• Parent Contact: Northern Region
  Buffy and Jim Grande
  703-425-5156
  E-mail: buffygrande@gmail.com  
• Parent Contact: Central Region
  Riess and Carey Wilks
  804-354-9799
  E-mail: Wilks@aol.com
  
• Parent Contact: Southwest Region
  Robert and Dian Bolling
  540-985-6697
  E-mail: vafragilex@yahoo.org
  
• Parent Contact: Southeast Region
  Tracey Weinstein
  757-467-2237
  E-mail: traceywein@aol.com

WASHINGTON

• Fragile X Association of Washington State
  Tel: 866-923-7292 (Julie Weaver)
  E-Mail: fxaws@wafragilex.org (Pat Tucker)
  Web: www.wafragilex.org

WEST VIRGINIA

• Parent Contact: West Virginia & Wash. D.C.
  Barbara & Phil Porterfield
  Home: 304-725-3279
  Fax: 301-497-7095
  E-Mail: fxproject@hotmail.com
  

WISCONSIN

• Southern Wisconsin Fragile X Resource Group
  Marcy Pipkorn
  Home Phone: 262-387-0810
  E-mail: jpipkorn@wi.rr.com
  Katherine Roeders
  Home: 414-350-2929
  E-mail: katiegibby@aol.com
  Web: http://www.fragilex.org/html/s_wisconsin.htm