> Home  > LINKS Groups and Parent Contacts  > Master list
links header

Linking Individuals Nationally in Knowledge and Support
A program of the
NFXF-logo_green in box_large.jpg

NFXF LINKS Groups and Parent Contacts Directory
Back to Map

Please Contact Us if you have difficulty reaching anyone listed on this directory.

ALABAMA

ALASKA

ARIZONA

  • Parent Contact: Scottsdale
    Anne Souder
    Tel: 480-483-6803
  • Parent Contact: Tucson
    Denise Robb
    Home: 520-742-4165
    E-Mail:  DRobb62@quest.net

CALIFORNIA

COLORADO

CONNECTICUT

FLORIDA

GEORGIA

IDAHO

ILLINOIS

INDIANA

IOWA

KENTUCKY

  • Parent Contact: Bluegrass
    Lynne Wolfe
    Tel: 502-863-6653
    E-Mail: wolfepac@bellsouth.net
  • Fragile X Resource Group of Greater
    Cincinnati-Northern Kentucky
    Joe Garera
    Home: 859-342-8150
    Parent Contact: Northern Cincinnati Area: Melissa Courtney
    Phone: 513-459-2176
    E-Mail: cvgfx@insightbb.com

LOUISIANA

  • Louisiana Fragile X Resource Group
    Kimberly Soileau
    Tel: 225-683-8006 
    Cell:  225-244-0871
    E-Mail: nks@iol27.com
    Parent Contact: Baton Rouge
    Patricia Kisamore
    Tel: 225-769-6145
    E-mail: Pookins@bellsouth.net

MAINE

MASSACHUSETTS

MARYLAND

MICHIGAN

MINNESOTA

MONTANA

MISSISSIPPI

MISSOURI

NEBRASKA

NEW HAMPSHIRE

NEVADA

NEW JERSEY

NEW MEXICO

  • Albuquerque Fragile X Resource Group
    Elizabeth Ramey
    Home: 505-565-0695
    E-Mail: e_ramey@msn.com

NEW YORK

NORTH CAROLINA

  • North Carolina Fragile X Resource Center
    Duke University Medical Center
    Deby Burgess
    Tel: Home: 919-563-5812
    Fax: 919-668-4496
    E-Mail: ncfraxfoundation@mebtel.net
  • Piedmont Fragile X Resource and Support Group (Winston-Salem, Greensboro and High Point)
    April Boone
    Tel: 336-765-7276
    E-mail: FragX1@yahoo.com

NORTH DAKOTA

  • Professional Contact: North Dakota
    Karen Gayton, OTR
    Home Phone: 701-255-9179
    E-mail: dgayton@bis.midco.net

OHIO

  • Fragile X Alliance of Ohio
    Leslie Bagdasarian
    Tel: 440-519-1517
    Fax: 440- 519-1518
    E-Mail: fraxohio@adelphia.net
    Web: http://www.fragilexohio.org
  • Fragile X Resource Group of Greater
    Parent Contact: Cincinnati-Northern Kentucky
    Joe Garera
    Home: 859-342-8150
    Parent Contact: Northern Cincinnati Area
    Melissa Courtney
    Phone: 513-459-2176
    E-Mail: cvgfx@insightbb.com

OKLAHOMA

OREGON

PENNSYLVANIA

PUERTO RICO

RHODE ISLAND

SOUTH CAROLINA

SOUTH DAKOTA

  • Parent Contact: South Dakota
    Kevin Waterman
    Home Phone: 605-338-6923
    E-mail: waterman@dakota.net

TENNESSEE

  • Fragile X Association of Tennessee
    Wendy and Bubba Griffin
    Tel: 931.359.1226 and 931.580.1226
    E-mail: yoder@tnweb.com

TEXAS

UTAH

VIRGINIA

WASHINGTON

WEST VIRGINIA

  • Parent Contact: West Virginia & Wash. D.C.
    Barbara & Phil Porterfield
    Home: 304-725-3279
    Fax: 301-497-7095
    E-Mail: fxproject@hotmail.com

WISCONSIN

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

TELL A FRIEND