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The members of the Fragile X Association of Michigan have continued to play an active role in the Washington D.C.
advocacy efforts of the National Fragile X Foundation. 2008 represented the sixth year in a row that the Fragile X Assoc.
of MI sent representatives to participate in the annual Advocacy Day Conference, in Washington D.C., sponsored by the National Fragile X Foundation.
Due in large part to the efforts of Michigan families, Senator Debbie Stabenow has once again agreed to co-lead the effort to convince her colleagues in Congress to increase the funds made available for Fragile X research and
programming. These efforts are beginning to pay off as a new Fragile X public health program at the Centers for Disease Control has just been funded for a second year.
Senator Stabenow was recently presented with the National Fragile X Foundation's Congressional Champion Award by the Fragile X Assoc. of Michigan's President, Laureen Majeske; Treasurer, Kim Young; Board Members, Arlene and
Jeffrey Cohen and Joshua Cohen.
Troy Chamber of Commerce
The Fragile X Association of MI is a member of the Troy Chamber of Commerce (TTC) and its Non-Profit Network (NPN)!
FXAM members are automatically TCC members and entitled to all TCC benefits, such as, Member2Member discounts, discounted educational seminars and social events.
Check out the website www.troychamber.com for a calendar of events and to learn more. Membership will provide us
with another avenue for informing the public about Fragile X, networking with over 750 companies and fundraising.
The Non-profit Network consists of approximately 25 community groups and charitable organizations that meet every other month to explore partnership opportunities and share information with each other.
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