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The Fragile X Association of Michigan unites the fragile X community to:
- Enrich lives through educational and emotional support
- Promote public and professional awareness
- Advance research toward improved treatments and a cure for fragile X syndrome.
The members of the Fragile X Association of Michigan have continued to play an active role in the Washington D.C. advocacy efforts of the National Fragile X
Foundation. 2005 represented the third year in a row that the Fragile X Assoc. of MI sent representatives to participate in the annual Advocacy Day Conference, in
Washington D.C., sponsored by the National Fragile X Foundation.
Due in large part to the efforts of Michigan families, Senator Debbie Stabenow has
once again agreed to co-lead the effort to convince her colleagues in Congress to increase the funds made available for Fragile X research and programming. These
efforts are beginning to pay off as a new Fragile X public health program at the Centers for Disease Control has just been funded for a second year.
Senator Stabenow was recently presented with the National Fragile X Foundation's Congressional Champion Award by the Fragile X Assoc. of Michigan's President,
Laureen Majeske; Treasurer, Kim Young; Board Members, Arlene and Jeffrey Cohen and Joshua Cohen.
Troy Chamber of Commerce
The Fragile X Association of MI has joined the Troy Chamber of Commerce (TTC) and its Non-Profit Network (NPN)!
FXAM members are automatically TCC members and entitled to all TCC benefits, such as, Member2Member discounts, discounted educational seminars and social events.
Check out the website www.troychamber.com for a calendar of events and to learn
more. Membership will provide us with another avenue for informing the public about Fragile X, networking with over 750 companies and fundraising.
The Non-profit Network consists of approximately 25 community groups and charitable organizations that meet every other month to explore partnership opportunities and share information with each other.
Our first partnership opportunity was the Troy Supper Bowl. This was a family event that took place in January at Somerset Mall. It featured football films, NFL player
and alumni appearances, live entertainment, auctions, skills contests, kid zone, and tailgate-style cuisine. Over 600 tickets were sold, collecting $8,000 for distribution to
the Non-profit Network. Donations to each organization were based on the number of volunteers. We had one FXAM member volunteer and received $100. There were 90
volunteers in total. In the future, we will send out a member notification of future fundraisers put on by the Non-profit Network in case anyone is interested in volunteering to raise funds for FXAM.
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