The Fragile X Resource Center of Missouri provides support and information to individuals with FXS and their families. The Center offers annual workshops for teachers, therapists and parents. The Center also sponsors fundraisers that support research to understand FXS and find a cure, and that develop educational methods to enhance the abilities of persons with FXS. The Center is a not-for-profit organization currently run by volunteer parents of children with Fragile X. Our center hosts support group meetings throughout the year. If you are interested in attending please contact us.

Ryan – Age 4 Alex – Age 3 Evan – Age 3

The Fragile X Resource Center of Missouri was founded by Margaret Israel in 1992 with the assistance of Judith Miles , M.D., Department of Child Health School of Medicine, University of Missouri Columbia, and the Missouri State Genetics Conference. With the 1991 identification of the FMR-l gene that causes Fragile X Syndrome, it was now possible to confirm that specific behaviors and educational concerns could be attributed to Fragile X. In the early years, the Resource Center made significant efforts to inform the general public about this newly diagnosed condition . There were interviews on local television, articles in local newspapers featuring families with Fragile X, public service radio spots, session presentations at subsequent state genetics conferences, and information tables set up at workshops and schools. Since 1993, the Resource Center has sponsored an annual symposium at Washington University featuring national experts on Fragile X Syndrome.

Video called Hopes - Dreams - Wishes

Video called Fragile X Advocacy Video