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Parent Contact: Paula Fasciano 732-591-2497 thefascianos@gmail.com
Professional Contact: Jennifer Keenan 856-985-3257 jencofx1@att.net
Doctors and other professionals parents from the group are wild about!!
Special Needs Lawyer
Herb Hinkle, Special Needs Lawyer
www.hinkle1.com
Developmental Pediatricians
Dr. David Burgess
Children's Healthcare Associates near Atlantic City (part of Children's Hospital of Philadelphia)
New Jersey (609)677-7895 Familiar with Fragile X, knows Randi Hagerman, and particularly good with medication issues.
Psychiatrist
Dr. Levitas
Stratford, New Jersey
Only sees patients registered with DDD, will need a DDD referal.
Pediatric Neurology
Dr. Wark
Children's Regional in Voorhees
THREE COOPER PLAZA CAMDEN,NJ
BUNKER HILL PLAZA SEWELL,NJ
MARTER AVENUE MOORESTOWN, NJ
856-342-2226 OR FOR APPTS.856-342-2001
Dental
Dr. Dianne Champion
Pediatric Dental Associates
Tara Professional Park
401 South Kings Highway Suite 4-B
Cherry Hill, NJ 08034
Veronica Bikofsky,DMD Newark Beth Israel and specializes in special needs dentistry.
973-923-6038.
Dr. Mary Voytus, Dentistry for the Disabled
973-429-6887
Dr. Stone, UMDNJ
973-972-7040
Dr. Radler in Little Silver (Dentist) knows about Fragile X
Dr. Ed Sonnenburg and he is with Flanders Pediatric Dentistry. (amazing!)
Dr. Portnoff in Edison (dentist)
Herbert H. Portnoff (dentist)
1656 Oak Tree Rd Edison, NJ 08820 732-549-3773
Dr. Lewis Kaye in South Jersey is one (dentist).
Dr. Gray from Newark at the Newark University Dental Clinic is amazing (dentist).
Health South has a Dental Surgeon in Voorhees NJ. Dr. Kaye, I heard he is amazing and the anesthesia people are wonderful with their pediatric patients. I did some training their and I was floored by how great they were,
especially the nurse anesthetists Leslee and Rosa Fe and Dr. Anna. Remember Health South in Voorhees as a specialty center for peds and dentistry. They have pediatric nurse anesthetists and a pediatric anesthesiologist
that is available to administer anesthesia.
OT Services
Find a OT in your area by looking at www.njota.org
Check www.developmentalfx.org for information on Speech and OT. Site is run by Tracy Stackhoue and Sarah (Mouse) Scharfenaker
Jenny Sammons of Voorhees Pediatric Outpatient Facility, 1304 Laurel Oak Road . Voorhees, NJ 08043. Jenny has extensive experience in Sensory Integration and has worked with a number of Fragile X children here and
abroad.TEL (856) 489-4520
Fragile X Specialists
Dr. Elizabeth Berry-Kravis
312-942-4036. Press #8 and you will get Theresa Stark, pediatric neurology assistant. She is very nice and will certainly help you make an appt. or give you the info. you need. We've traveled from Wisconsin to see Dr. Kravis
and it was the best thing we ever did. She is VERY nice, talked to us for hours, not just minutes. She was the first Dr. we've seen that actually knows about Fragile X. I have also emailed her with questions and she responds
usually the same day.
Dr. Randi Hagerman at the MIND Institute at University of California (Davis)
Avoid Dr.s
Dr. Wolfson, IBR. Not a good manner
Books and Educational Resources
Great Resources
The National Fragile X Foundation at www.fragilex.org Great Books
Lesson Planning Guide for Students with Fragile X Syndrome can be found on www.fragilex.org/html/resources2.htm
The Source for Fragile X Syndrome by Gail Harris-Schmidt and Dale Fast
Building Bridges through Sensory Integration
2nd edition, by Ellen Yack, Shirley Sutton & Paula Aquilla who are 3 OTs
Inclusion 101
How to Teach All Learners By Anne M. Bauer, Ed.D., and Thomas M. Shea, Ed.D.
Cooperative Learning and Strategies for Inclusion Celebrating Diversity in the Classroom, Second EditionEdited by JoAnne W. Putnam, Ph.D.
Teachers' Guides to Inclusive Practices
By Martha E. Snell, Ph.D., and Rachel Janney, Ph.D., with invited contributors
Quick-Guides to Inclusion
Ideas for Educating Students with Disabilities
Edited by Michael F. Giangreco, Ph.D.
Inclusive High Schools
Learning from Contemporary Classrooms
By Douglas Fisher, Ph.D., Caren Sax, Ed.D., and Ian Pumpian, Ph.D
Inclusive Middle Schools
By Craig H. Kennedy, Ph.D., and Douglas Fisher, Ph.D.
Educational Resources
National Fragile X Foundation has resources. You can order online at www.fragilex.org/html/resources2.htm
You can reach Dr Braden directly at: Marcia Braden Ph.D. 100 East St Vrain Ste 105 Colorado Springs, Colorado 80903 (719)633 3773
Edmark recomended as a reading program
Dolch Words" for frequently used words
Handwriting Without Tears ( www.hwtears.com ), for the cursive writing
Judy Clock for telling time
A great autism web site to check out is www.trainland.tripod.com/lndex.htm
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