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Prior Audio WebcastsThriving Not Just Surviving: Family Self-Care September 15, 2009 All three presenters are also moms of sons with fragile X syndrome. Listen to their insights based on real-life experiences for doing more than just coping. Learn how to take care of yourself and thrive while also meeting the needs of your family. Let’s Get
Going: Toileting Ideas Tuesday, April 14th,
2009 Karen S. Riley, Ph.D. is currently an Assistant Professor at the University of Denver in the Morgridge College of Educational in the Child, Family and School Psychology Program, where she is the CO-PI of Project InSPECT, a federally funded training program for school psychologists with an emphasis on early intervention. Her education includes a B.S. in Psychology from Colorado State University; a M.A. in Early Childhood Special Education from the University of Denver and a Ph.D. in Educational Psychology with an emphasis in Child and Family Studies from the University of Denver. She completed a post-doctoral fellowship at The Children’s Hospital in Denver in the Fragile X Treatment and Research Center and subsequently worked at the Child Development Unit within The Children’s Hospital. She has over 15 years of experience in teaching and administration of early childhood special education programs. She has an additional 10 years of experience working with children with neurodevelopmental disorders and their families. She has been involved in several psychopharmacological studies and other research projects related to fragile X syndrome and other neurodevelopmental disorders. Particular areas of interest and expertise include assessment and intervention of infants and preschoolers, curriculum development, school consultation, behavioral interventions and low incidence disabilities. She lectures extensively throughout the US as well as internationally, on behavioral and educational interventions for children with neurodevelopmental disorders. Dr. Riley is married and has two children. Cindi Rogers is a mother to two boys affected with Fragile X Syndrome. She has been a board member at Developmental FX for five years. She served as the Parent Liaison for the Children's Hospital Child Development Unit for 6 plus years and has been involved in the Fragile X Community for 17 years.
"Coping with and Adapting to the FXS Diagnosis" Brenda Finucane, MS, CGC is the Executive Director of Genetic Services at Elwyn, a large, nonprofit corporation in southeastern Pennsylvania which provides a wide variety of services for people with
developmental disabilities. Ms. Finucane is widely published and has gained national recognition for her expertise in the behavioral and cognitive manifestations of genetic syndromes. She serves on the Scientific and Clinical Advisory
Committee of the NFXF and is also active in several other genetics support organizations. For over two decades at Elwyn, Ms. Finucane has worked to create practical services which address the educational, behavioral, and health needs of
people with fragile X syndrome. She and her colleagues at Elwyn provide consultations to school districts and agencies throughout the US and Canada. Tuesday, December 2nd 2008 webcast can be found at: For Parents When They Learn That Their Child Has a Disability, by Patricia McGill Smith, Executive Director, National Parent Network on Disabilities, 3rd Edition (2003). www.nichcy.org/pubs/newsdig/nd20txt.htm
Educating Teachers and Students about Fragile X;
The National Fragile X Foundation presents Fragile X specialist,
To view a recording of the National Fragile X Foundation's three-hour webcast on "Fragile X Syndrome: Treatment of Difficult Cases," broadcast from Children's Hospital Denver
on July 20, 2007, please use the following link: http://www.fragilex.org/html/webcastjuly20-2007.htm |
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