Public Policy/Legislative Advocacy

ADVOCACY DAY 2009
Click on the above Photo to View the Advocacy Photo Gallery
 

• Welcome Message-Learn more about and join the effort.

 U.S. Congressmen Form Fragile X Caucus 

The U.S. Congress has taken an important step forward toward recognizing the public health and scientific significance of the conditions associated with a mutation of the Fragile X gene. Congressmen Hare, Harper and Delahunt's formation of a Fragile X Caucus signifies that Congress understands that unlocking the secrets of Fragile X will help lead to more effective treatments not only for fragile X syndrome and associated disorders but also for autism, Alzheimer's, Parkinson's and other causes of developmental disabilities and neurodegenerative conditions. ­ Jeffrey Cohen, Chair, Public Policy Committee, NFXF

 Advocacy Updates and Alerts 

• Advocacy Action Alert 3-16-09 ACT NOW!
• March 2009 Action Update
• Advocacy Update 3-4-09 2009 Advocacy Day Information
• Advocacy Update 9-6-07 Largest Ever NIH Fragile X Grant Awarded

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Register as a Fragile X Advocate to Receive Regular Advocacy Updates and Action Alerts

-Act Now For Fragile X-Write and Email Your Members of Congress
-Find and Learn More About Your Members of Congress and Their Committee Assignments
-Read About Issues of Critical Importance to the Fragile X Community


• The Advocacy Agenda of the National Fragile X Foundation
  Read about our agenda for the upcoming year and beyond.
   
• Participate in our online Message Board where you can post comments, questions and ideas. 
   
• Read Public Policy Updates from recent editions of the Foundation Quarterly, A Journal for Parents and Professionals.



Select from the following list... FQ Issue April 23 2006 FQ Issue July 24 2006 FQ Issue Nov 25 2006 FQ Summer/Fall 2004 FQ Winter 2005FQ Spring 2005 FQ Issue 21 September 2005 FQ Issue 22 December 2005

• Learn how a Bill becomes a law
  House of Representatives
  Senate
   

The new National Fragile X Public Health Program
at the Centers for Disease Control
National Center on Birth Defects and Developmental Disabilities

• Contact our Washington Team
   
• Visit the THOMAS World Wide Web site at the Library of Congress 
  Acting under the directive of the leadership of the 104th Congress to make Federal legislative information freely available to the Internet public, a Library of Congress team brought the THOMAS World Wide Web system online in January 1995, at the inception of the 104th Congress. Virtually anything you want to know about what Congress is doing and how it's accomplished can be found at THOMAS.
   

 Congressional Champions for Fragile X