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Public Policy/Legislative Advocacy

Join us for Advocacy Day picture 2009

ADVOCACY DAY 2009
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 U.S. Congressmen Form Fragile X Caucus 

The U.S. Congress has taken an important step forward toward recognizing the public health and scientific significance of the conditions associated with a mutation of the Fragile X gene. Congressmen Hare, Harper and Delahunt's formation of a Fragile X Caucus signifies that Congress understands that unlocking the secrets of Fragile X will help lead to more effective treatments not only for fragile X syndrome and associated disorders but also for autism, Alzheimer's, Parkinson's and other causes of developmental disabilities and neurodegenerative conditions. ­ Jeffrey Cohen, Chair, Public Policy Committee, NFXF

PRESS RELEASE FROM THE OFFICE OF CONGRESSMAN PHIL HARE

 Advocacy Updates and Alerts 

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The new National Fragile X Public Health Program
at the Centers for Disease Control
National Center on Birth Defects and Developmental Disabilities

  • Contact our Washington Team
     
  • Visit the THOMAS World Wide Web site at the Library of Congress  [Link to THOMAS Home Page]
    Acting under the directive of the leadership of the 104th Congress to make Federal legislative information freely available to the Internet public, a Library of Congress team brought the THOMAS World Wide Web system online in January 1995, at the inception of the 104th Congress. Virtually anything you want to know about what Congress is doing and how it's accomplished can be found at THOMAS.
     

greenlogoverytiny Congressional Champions for Fragile X greenlogoverytiny 

Senator Stabenow, Josh Cohen Kim Young, Laureen Majeske, Josh Cohen, Senator Stabenow, Jeffrey Cohen, Arlene Cohen

Senator Debbie Stabenow of Michigan is presented with the NFXF Champion Award for her leadership and support of Fragile X funding.
L-R Senator Stabenow, Josh Cohen
L-R Kim Young, Laureen Majeske, Josh Cohen, Senator Stabenow, Jeffrey Cohen, Arlene Cohen

George Radanovich and John Harrigan

On behalf of the Foundation and its California Central Valley Fragile X Resource Group, John Harrigan, Board President (right) presented an award to Representative George Radanovich of California in appreciation for his leadership of our legislative agenda in 2004 and again in 2005.

Specter with Parker and Cohen

Senator Arlen Specter of Pennsylvania received the Congressional Champion Award" from Bill Parker (left) and Jeffrey Cohen.

 

Harkin with Cohen and Judges

Senator Tom Harkin of Iowa receives the "Congressional Champion Award" from Jeffrey Cohen (left) and Joe & Tricia Judge.

Phil Hare with Holly Ross

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