Media Resources

Twin brother & sister with fragile X syndrome, along with their mother (FX carrier) & their father

The National Fragile X Foundation takes a comprehensive approach to helping families and individuals impacted by Fragile X-associated Disorders (FXD). We provide emotional, informational and referral support, promote awareness in the general public and medical professional communities, organize international and regional educational conferences, publish and distribute free educational materials, fund clinical and basic science research, and conduct legislative advocacy in Washington, DC for dedicated research funding at the National Institutes of Health, the Centers for Disease Control and the Department of Defense. We also provide the organizational infrastructure for a consortium of Fragile X clinics internationally as well as for a network of volunteer support groups around the United States.

Media Contact

Beth Walker
Director of Communications
beth@fragilex.org
248-882-3703

Please contact us if you would like to be added to the NFXF media contact list.