Press Releases

  • FOR IMMEDIATE RELEASE Ted Coutilish (734) 320-7981 tcoutilish@fragilex.org www.fragilex.org (Walnut Creek, CA, October 12, 2013) The National Fragile X Foundation Board of Directors has named Jeffrey Cohen as interim executive director. “We are fortunate Jeff has accepted this role,” NFXF Board President Brad Whitus said. “As a past board president and current Foundation Director of Government Affairs and Advocacy, he is very knowledgeable, widely respected, trusted and admired within the Fragile X community, and is an outstanding advocate. We are excited to move forward seamlessly under his leadership.” Cohen succeeds Robby Miller, who joined the NFXF as executive director in... » FULL ARTICLE

    Posted on October 12, 2013 | Categories : Press Release | 0 Comment
  • Later this spring, Congressman Greg Harper (R-MS) and the National Fragile X Foundation will host a Congressional Roundtable to explore how best to realize the full potential of these research breakthroughs linking Fragile X and autism. The White House clearly sees this potential as well, as the proposed $100 million brain mapping project will only accelerate the pace at which Fragile X and autism will be conquered. » FULL ARTICLE

    Posted on April 10, 2013 | Categories : Press Release | 7 Comments
  • As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and fragile X syndrome (FXS) are moving closer to reality. » FULL ARTICLE

    Posted on February 27, 2013 | Categories : Advocacy,Press Release | 36 Comments
  • FOR IMMEDIATE RELEASE Contact: Robert Miller (925) 938-9300 robmiller@fragilex.org www.fragilex.org Recent findings regarding Fragile X are being discussed at the 13th International Fragile X Conference in Miami. These include that many of the approximately one million carriers of the Fragile X (FX) gene premutation in the U.S., previously believed to be spared from consequences of the mutation responsible for fragile X syndrome (FXS), appear to be at increased risk for development of several significant and adverse health conditions such as: psychological, neurological and auto-immune problems in addition to the already recognized conditions of: fragile X-associated tremor/ataxia syndrome (FXTAS), a debilitating... » FULL ARTICLE

    Posted on July 26, 2012 | Categories : 2012,Press Release | 21 Comments
  • FOR IMMEDIATE RELEASE Contact: Robert Miller (925) 938-9300 robmiller@fragilex.org www.fragilex.org Walnut Creek, Calif. — The National Fragile X Foundation, the world’s leading authority on fragile X syndrome, launched its new website today. The site, fragilex.org, has been completely overhauled with a new look that’s broad, roomy, clean, simple and modern. But far from being just the same old site in a flashy new wrapper, the new site has a lot more going on under the hood — simpler navigation, more interactive features, new content, integration with social media networks, intuitive forms and the ability to chat while visiting any... » FULL ARTICLE

    Posted on January 17, 2012 | Categories : Press Release | 0 Comment