Fragile X News

• October Fragile X Fundraisers Review

  Mouse Races October 1, 2011 St. Louis, MO Fragile X Resource Center of Missouri The 6th Annual Mouse Races held October 1st was a fun celebration of being together with our Fragile X Family and friends while raising money for Fragile X. Debbie Meis coordinated this year's event staffed by a planning team including Darlene Coats, Dawn and Rich Erker, Kim Eyermann, Sara Hamilton, Mary Anne Schnettgoecke, Diane Southard

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  Posted at October 31, 2011 | Categories : Fragile Xtras,Fundraising | 0 Comment

• Make a Difference at Advocacy Day 2012

  Advocacy Day 2012 is just around the corner. The date is March 6-7, 2012 and as in prior years training will be held on Tuesday (March 6) from 1-5pm and Congressional visits will be scheduled from 9am-5pm on Wednesday (March 7). The hotel is the same we stayed at last year and the rate is the same as last year ($219 plus applicable taxes and fees). Also, bus transportation

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  Posted at October 31, 2011 | Categories : 2012,Fragile Xtras | 2 Comments
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  Self-Regulation Through the Life Span

  What is self-regulation and how do we modify it for Fragile X? Join the National Fragile X Foundation's Executive Direct, Robert Miller and Coordinator of Support Services, Jayne Dixon Weber as they interview LINKS Group Leader and Fragile X parent Laureen Majeske and

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  Posted at October 31, 2011 | Categories : Fragile Xtras,Podcast | 0 Comment
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  How to enjoy Halloween with Sensory Challenges

  Is Halloween a tough time for your child? Check out this article for some helpful tips from the American Occupational Therapy Association to help your child with sensory difficulties enjoy Halloween! Sensory ideas for Halloween Happy Halloween!

  Posted at October 25, 2011 | Categories : In the News | 1 Comment
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  Parent/Caregiver Support Meeting in Western NY on Nov. 7, 2011

  Please join us for a parent and caregiver support meeting on Monday November 7, 2011 hosted by the Fragile X Resource Group of Western New York. Date and Time Monday, November 7, 2011 7:00 pm Location The home of Marlene & Michael Katzel 503 Linwood Buffalo, NY 14209 RSVP to Janet Fisher email: Janfish5@gmail.com phone: (716) 741-7192

  Posted at October 21, 2011 | Categories : Social Gathering | 1 Comment
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  Join the Parade in Independence, MO

  Saturday, October 29 at 4:00 p.m. is the Independence, Missouri Halloween Parade and you can be in it! The Fragile X LINKS Group of Kansas City invites you to walk the route along with them. Dress up and bring family photos/signs to carry and candy to hand out. They will be using the Fragile X-Press Barrel Train which will

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  Posted at October 17, 2011 | Categories : Happenings | 1 Comment

• Call for Abstracts for 2012 Conference

  The National Fragile X Foundation invites all persons interested in Fragile X to submit abstracts to be considered for presentation at the 13th International Fragile X Conference. Submissions will be accepted from October 14, 2011 to January 31, 2012. The objectives of the conference are: To provide a forum in which professionals from the Fragile X and intellectual disabilities fields can present their scientific, clinical or scholarly work; To present a general program that will be informative and

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  Posted at October 14, 2011 | Categories : International Fragile X Conference | 1 Comment

• Study Recruitment: Children & Adults with Fragile X Syndrome Nashville’s Fragile X Treatment Research Program, Vanderbilt University

  This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Nashville's Fragile X Treatment Research Program at Vanderbilt University. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot

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  Posted at October 13, 2011 | Categories : Opportunities for families | 0 Comment
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  13th International Fragile X Conference information is now online!

  The 13th International Fragile X Conference section of our site has now been published. This year's conference will be in Miami, Florida from July 25-29, 2012 at the InterContinential Hotel. We have posted all of the current information we know about the conference including information on the hotel room rate. Please be sure to return to the page

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  Posted at October 13, 2011 | Categories : International Fragile X Conference | 13 Comments
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  Podcast Questions: Self-Regulation Across the Lifespan

  On Thursday, we will be recording our next podcast, entitled "Self-Regulation Across the Lifespan." If you have any questions on the topic, please leave them in the comments below, or email us at podcast@fragilex.org. If you have a preference, let us know if you'd like your name to stay anonymous or how you would like us to refer to you if we

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  Posted at October 11, 2011 | Categories : Podcast | 0 Comment