Become An NFXF Xceptional Donor!
Xceptionals play a crucial role in the National Fragile X Foundation and its efforts to help the approximately 1 million Americans impacted by a Fragile X-associated Disorder. By committing to monthly or quarterly financial support of the foundation at a $1,200 or higher annual level, Xceptionals provide a powerful anchor that ensures the long-term health and vitality of the organization. With our Xceptionals behind us, we can build on the vision that the entire Fragile X community shares for enhanced support of families and individuals, increased awareness and research, new treatments, and ever more effective legislative advocacy.
How Your Commitment Helps
The NFXF provides a wide range of services and programs that our Xceptionals help to fund. Among them:
- Support through the staffing of a toll-free phone line, email access, and social media pages including Facebook and Twitter, where we work to connect individuals impacted by Fragile X.
- Education through an extensive website at www.fragilex.org and numerous print materials.
- Awareness activities such as public service announcements and mailings to physicians and educators.
- Sponsorship and organization of the biennial International Fragile X Conference.
- Family LINKS Groups across the country for information sharing and support.
- Legislative advocacy efforts in Washington, DC that have resulted in 10 million new dollars for Fragile X research and programming at the Centers for Disease Control, and a near doubling (to nearly $30 million annually) of the Fragile X research budget at the National Institutes of Health.
- Funding of scientific research into the causes and treatments of Fragile X conditions.
- Establishment of the Fragile X Clinical & Research Consortium, with over 25 clinics now operating (more are planned) across the U.S. All of them are staffed by professionals ready to assist families in the diagnosis and treatment of Fragile X.
- Participation as a founding partner of a national organization working to ensure the full human and legal rights of adults with intellectual disabilities.
We Made the Commitment
The NFXF was the first place we turned for information when we received the diagnosis for both our boys in 2004. And it’s where we still turn for up-to-date information and resources, whether it’s for our family, therapists, school, or wider community. We are so appreciative of all the networking, fellowship and support it has given our family, and we feel so fortunate that we are now in a position to support it in turn through the Xceptionals Program!
-- Tracey Petrides, MD, and John Petrides