Webinars & Videos

Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.

An update on Shionogi’s EXPERIENCE clinical trial program in Fragile X syndrome, hosted by FRAXA and the National Fragile X Foundation. This webinar discusses the recently shared trial updates, what is known so far, and what comes next.

Experts discuss how anxiety manifests differently across developmental levels, its overlap with depression, and evidence-based treatments, including behavioral and medication approaches. Presenters share practical tools for managing anxiety in school, work, and social settings.

Guidelines with relevant resources for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.

Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.

The NFXF and LivJoy Foundation have partnered to present the Females with Fragile X syndrome webinar series. Join NFXF Executive Director Hilary Rosselot, LivJoy Foundation President Rachel Clouse, and LivJoy Foundation Fellow Dr. Lauren Jenner.

A discussion with Dr. Jeanine Coleman about the skills needed for college and how they’re linked directly to skills that begin in early childhood.

This session reviews features of attention problems, hyperactivity, and impulsivity in FXS and reviews previous studies of ADHD in Fragile X.

Barbara Haas-Givler and Cora Taylor discuss executive functioning in individuals with both the Fragile X full mutation and the premutation, including what executive function is and strategies to support individuals.

Dr. Heather Hipp, a reproductive endocrinologist at Emory University, discusses reproductive considerations for women with a Fragile X premutation, including FXPOI and the process for diagnosis.