Posted at December 17, 2013 | Categories : Opportunities for families | 1 Comment

MIND Institute Study on Men with FX Premutation

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of UC Davis MIND Institute. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot be responsible for any outcomes, lack of outcomes or unintended side effects. Your name or other personal information have not been shared with the researchers/company/institution. If interested in participating in this research, it is your responsibility to use the contact information in this announcement. Additional opportunities for being part of research studies can be found at research.fragilex.org.

Clinical Research Information:
(916) 703-0320
General Information:
(916) 703-0280
mindinstitute.ucdavis.eduUC Davis MIND Institute - Study on Men with Fragile X Premutation

Study Focused on Men with theĀ Fragile X Premutation

We are searching for men who are carriers of the Fragile X premutation between the ages of 40 and 69 to participate in a longitudinal UC Davis research project, studying changes in brain and cognition associated with aging. For men who have not yet been tested, FMR1 DNA testing is completed to help determine eligibility for the study. The study involves three 2-day visits over the course of five years, and each visit includes:

  • Pictures of the brain, taken while engaged with different tasks.
  • Testing of thinking and memory skills.
  • Blood samples for testing related to the FMR1 gene.
  • Interviews and questionnaires focused on health history.

Participants will be compensated $200 for each 2-day visit ($100 for completing each day), and we offer travel and lodging reimbursement. Participants are also given a picture of their brain. We can also provide feedback on cognitive strengths and weaknesses.

Please contact us if you or someone you know may be interested in participating, or for more detailed information:

David Hessl, Ph.D.
Principal Investigator
(916) 703-0249
david.hessl@ucdmc.ucdavis.edu

Jessica Famula
Recruitment Coordinator
(916) 703-0470
jessica.famula@ucdmc.ucdavis.edu