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Learn about FXS, FXPOI, FXTAS, being a carrier and more!
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Treatment and Intervention
Events
Top 10 Things To Do After Your Child Is Diagnosed with FXS
Your child has just been diagnosed with fragile X syndrome (FXS). Where do you begin?
More Treatment and Intervention
- Transitioning Into Kindergarten: Ideas from Parents
- Behavior Modification in the Classroom
- How to Encourage Play—and Why It Is So Critical for Your Child
- 8 Tips on Transitioning Your Child to Adult Services
- Is Your Child’s Behavior a Manifestation of His Disability?
- Navigating the Road to Inclusion
- Reading, Writing & Behavior?
- Published: Newborn, Carrier, and Early Childhood Screening Recommendations for Fragile X
- Top 10 Things a Teacher Should Know About Fragile X Syndrome
- Communicating Through Behavior
- A Primer on Sensory Integration
- Building Social Supports: A Guide for Parents
- Back to School Without a Bang
Let 'Em Know
Virtual Run/Walk for FX
July 1-31, 2013
14th International
Fragile X Conference
July 16-20, 2014
Parents, caretakers, researchers and other professionals are invited to this 5-day conference to earn the latest on Fragile X research, treatment and therapy. Get the support you need, and start lifelong friendships with people who understand!
More Events
June- 22 - The Mathias Family - 7th Annual Walk for Fragile X, Bernville, PA
- 25 - Fragile X Families of the Appalachians - 1st Annual Pound Heritage Days 5k Run for Fragile X Families of the Appalachians, Pound, Virginia
- 26 - Indiana Fragile X Clinic - Meet and Greet
- 26 - Fragile X LINKS Group of Eastern MA - FXMNO (Fragile X Moms' Night Out)
- 5 - NIEW Links - Fundraiser TGIF Thank Goodness I'm Fragile, Clarkston, WA
- 6 - Fragile X of Minnesota - Saturday coffee
- 6 - Kansas FX LINKS Group - Get Together in Vassar, KS
- 7 - NIEW Links - Meeting St . Joes Hospital, Clarkston, WA
Latest News
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Walking, Running, and Hiking for a Cause! And the 2012 Annual Report!
Posted on June 19, 2013
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A Bump in the Drug Therapy Road: What Can Advocates Do?
Posted on June 18, 2013
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Stanford Study on Problem Behaviors in Adolescents with Fragile X
Posted on June 13, 2013
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Study on Spoken Language in Children, Adolescents, and Young Adults with Fragile X Syndrome
Posted on June 12, 2013
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Ongoing Studies at the Fragile X Treatment Research Program at Vanderbilt University
Posted on June 11, 2013
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Dr. Elizabeth Berry-Kravis on the Challenges Inherent in a Clinical Trial
Posted on June 10, 2013
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NY Times : An Experimental Drug’s Bitter End
Posted on June 7, 2013
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Webinar: Let’s Talk Medication for Fragile X Syndrome featuring Dr. Craig Erickson
Posted on June 7, 2013
Faces of Fragile X
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