- Fragile X-associated Disorders
- Treatment & Intervention
- Support the NFXF
We are proud to announce that Charity Navigator has awarded us the prestigious rating of 4 Stars. That's the highest possible rating from America's Largest Charity Evaluator. The goal of the Charity Navigator is to guide "intelligent giving", informing donors about the most efficient and responsive charities. While many of you already know that the NFXF is worth supporting (and we
. . . Read More: Charity Navigator Awards NFXF With a 4-Star Rating
This Thanksgiving we want you to know that we are extraordinarily grateful to you for making our work possible. Thank you! We'd love to see your posts on "thankfulness" on our Facebook page!
. . . Read More: We're Thankful... For You!
I'm very excited to share this short video I recorded recently thanks to the generosity of our friends at the Giving Library. In it, I talk about how Fragile X affects our lives and the ways the National Fragile X Foundation has helped make a world of difference to many families, including mine. I hope you'll take the time to watch it and share it with your family and friends.
. . . Read More: Fragile X and the NFXF, Courtesy of the Giving Library
Have you ever wished you could organize a fundraiser, but thought the the work would be more than you could handle? So did Marie Horowitz and Janet Armetta until they found a partner in Applebee’s Restaurants. Applebee’s Flapjack Fundraiser program.....
. . . Read More: Flapjack Fundraisers, Bowling for X's and more!
The National Institutes of Health has awarded a major grant to conduct a clinical trial on iPad Assisted Language Development. An Autism Speaks funded study reported encouraging findings on the effectiveness of using speech generating devices to encourage speaking in minimally verbal children ages 5 to 8 with autism. The findings have created excited interest
My whole marriage to my husband Vince can be described by one acronym: FXTAS. Our wedding was in April 1999. It was a second marriage for us both, and we weren’t youngsters (I was 48 and Vince was 64), but I thought we were both healthy. We had no inkling that Vince’s mind was already deteriorating from FXTAS.
. . . Read More: When “Marriage” Is Spelled F-X-T-A-S
We are studying an experimental medication for fragile X syndrome in children and adolescents. We hope to learn if this experimental medication is safe, how well your body manages the medication (tolerability), how much medication is in your body (pharmacokinetics) and if it works on symptoms of Fragile X Syndrome. Children and adolescents with Fragile X Syndrome (between 5 and 17 years of age) may participate. Costs for travel,
As part of the Collaboration to Promote Self-Determination, one of the issues that we at the NFXF have been concerned about is sheltered workshops and how they keep individuals out of integrated work environments. Massachusetts
. . . Read More: Massachusetts Ends Sheltered Workshops, Sets Promising Model
Contact: Mark Derewicz email@example.com (919) 923-0959 University of North Carolina Health Care CHAPEL HILL, N.C. – When you experience something, neurons in the brain send chemical signals called neurotransmitters across synapses to receptors on other neurons. How well that process unfolds determines how you comprehend the experience and what behaviors might follow. In people with fragile X syndrome, a third of whom are eventually diagnosed with Autism Spectrum Disorder, that process is severely hindered,
Date: Monday November 18, 2013 Time: 8:00 PM Eastern / 7:00 PM Central 6:00 PM Mountain / 5:00 PM Pacific Description Dr. Marcia Braden, licensed psychologist and noted Fragile X expert, will be leading our "Let's Talk" Webinar on Behavior. She will begin with a presentation on "How Neurobiology Affects FXS Behavior", followed by a Q&A session or which you can submit your questions to Dr. Braden. Deadline to
. . . Read More: Webinar: Let's Talk Behavior and FXS