Posted at June 11, 2013 | By: | Categories: Opportunities for families | 0 Comment

Ongoing Studies at the Fragile X Treatment Research Program at Vanderbilt University

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Fragile X Treatment Research Program at Vanderbilt University. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot be responsible for any outcomes, lack of outcomes or unintended side effects. Your name or other personal information have not been shared with the researchers/company/institution. If interested in participating in this research, it is your responsibility to use the contact information in this announcement. Additional opportunities for being part of research studies can be found at research.fragilex.org.

Fragile X Treatment Research Center At Vanderbilt

Dear Member of the Fragile X Community,

We are contacting you to let you know about a research program at Vanderbilt University. This program studies new treatments for individuals with fragile X syndrome.

The purpose of the Fragile X Treatment Research Program is to find out if certain medications are helpful for people with fragile X syndrome. These studies are based upon research findings in animals suggesting these medications may improve problem behaviors and learning in fragile X syndrome. The research group is actively seeking adult, adolescent, and child participants with fragile X syndrome. Please find some recruitment materials for your review.

General Fragile X Handout

All study related care, including visits, evaluations, and study medications will be provided to you at no cost.

If you would like to learn more about the Fragile X Treatment Research Program and current studies, please contact Sarah Marler, at (615) 936-3288 or sarah.marler@vanderbilt.edu.

Sincerely,
Jeremy Veenstra-Vander Weele, M.D.
Assistant Professor, Psychiatry and Pediatrics
Vanderbilt University
MRB III, 465 21st Ave S, Room 7141
Nashville, TN 37232-8548
(615) 936-1701; (615) 936-7475 (fax)
j.vvw@vanderbilt.edu
www.vanderbilt.edu/vvwlab

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