- Fragile X-associated Disorders
- Treatment & Intervention
- Support the NFXF
At the National Fragile X Foundation (NFXF), our mission is to serve you by connecting and supporting individuals and families through the Community Support Network (CSN).
The Community Support Network is the national volunteer program of the NFXF, comprised of groups typically organized and run by parent volunteers. We also have “Parent Contacts” who agree to have their contact information made available to other parents or individuals in their area, especially those with newly diagnosed children.
If you are not a member of your local Community Support Network, now is the time to get involved! You’ll find all sorts of activities like a “Night Out” that focuses on moms, dads or even siblings. Some groups host picnics, bowling and trips to museums. The Community Support Network truly offers you a chance to meet others who understand the issues you’re facing.
Getting involved in the Community Support Network is also a wonderful way to give back to the Fragile X community. You’ll find out how much fun it is to fund-raise with others through walks, flower sales and pumpkin parades. Many of our leaders provide the community with educational seminars, help with IEP’s and even organize trips to National Fragile X Advocacy Day which empowers their members.
And that’s only a few examples of the wonderful things the Community Support Network provides. Scroll down to view the interactive map that can put you in touch with the nearest Community Support Network group.
For more information about volunteering as a group leader in the Community Support Network or becoming a Parent Contact please email email@example.com.
If you are seeking medical support related to Fragile X, please visit the Fragile X Clinic & Research Consortium (FXCRC). The FXCRC is partnered with the Community Support Network to bring you both the emotional and medical support that you need.